EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Feb 06, 2004 Posts: 10 Location: Sheffield UK
Posted: Fri Feb 27, 2004 8:44 am Post subject: Caprivax Trials
I've been on these trials for a month now and I thought others might want to know about it. You can find information about the 'product' on this site- just type Caprivax into the search section.
Don't ask how I got to hear about it - friend of a friend type of thing.
Anyway from my home in Sheffield (UK), we - my partner Lorraine and I -have had to travel the 500 mile round trip to Kent for the first few injections (once a week). Last week the doctor gave me three weeks supply so I could self medicate.
On our first visit we met a number of MS sufferers, most of whom reported significant improvements in their conditions including one woman who was 'chair bound' before beginning the treatment. The organisation involved also produce a DVD featuring up to twenty people whose lives have been turned around by this new wonder treatment.
I would like to report changes in my condition but nothing as yet. Early days? We shall see. [/quote]
Joined: Jan 27, 2004 Posts: 14 Location: London, England
Posted: Sat Feb 28, 2004 11:31 am Post subject:
I have just been accepted onto a separate trial for the drug company alongside the official clinical trial (no placebos ).
Aikika, did you have to go to Chislehurst in Kent? If so, our paths may cross in the future. My first appointment is at St George's in Tooting in about three weeks' time.
As Caprivax serum is made from goat's blood, there are quite a few jokes being made at the moment about me having to watch that I don't start to eat the carpets and wallpaper, etc. You can imagine
Joined: Feb 06, 2004 Posts: 10 Location: Sheffield UK
Posted: Sun Feb 29, 2004 7:13 am Post subject:
Hi Anne
Yes to Chistlehurst, but somehow I've bypassed Tooting.
My next appointment is on Friday 19th March at midday.
At the moment I feel a little reluctant to discuss all the whys and wherefores as Daval seem to want to keep all of this under wraps. Something to do with patents and intellectual property. I was told at one point that I would have to sign some sort of disclaimer, but it never happened.
As for the goat thing, my friends are keeping a watch on my chin and wouldn't be at all surprised if the horns (which they've always suspected) started to show.
Good luck to you
Petar. _________________ The growing good of the world is partly dependent on unhistoric acts.
Joined: Feb 13, 2004 Posts: 66 Location: Fort Smith Arkansas
Posted: Sun Feb 29, 2004 7:51 am Post subject: Caprivax trials....
Thank you so much for your post! Living in the states, as I do, the only info I can get is doing a search on here .
I am a support group leader through MSAA, and this was the subject of our last meeting...it sounds promising enough, and I have an excitement about it, that I haven't had in a long time! However, I am VERY cautiously watching (or trying to, anyway,lol) this trial to see what happens.
I can't thank you enough for posting this,it's fantastic!! Can you tell me if this is an intra-muscular injection or just sub-q?? I'm guessing it's intra-muscular, for it to be given only once a week...
Again, thank you so much for this info . I hope you soon see a difference in your MS
Joined: Feb 13, 2004 Posts: 66 Location: Fort Smith Arkansas
Posted: Sun Feb 29, 2004 8:00 am Post subject: Goat serum trials....
Ann,
CONGRATULATIONS!! I'm very happy for you! I noticed another post here, also, and I thank you all for the info....since I live in the states, we don't have a lot of info on this , but with ppl as yourself, and others, maybe that can change-at least on this board, anyway .
I wish you great results, and keep us posted! Also...I would like to say a big THANK YOU!!! to all who are participating in this-if not for you and others, where would we be regarding meds??
Joined: Feb 13, 2004 Posts: 66 Location: Fort Smith Arkansas
Posted: Mon Mar 29, 2004 6:45 am Post subject: Caprivax Trials
Hi Finn
Thanks for the info, but I'm soooo confused now ...does this mean that we will no longer have "Caprivax" but WILL HAVE "Aimspro"?? Do you know the date of the article you posted??
I looked on another site(and I don't remember what it was ), and found that veterinarians have been using this for some time, as a vaccine for goats!
Anyway, thanks for the site, and any info you, or anyone else can give me on this will be greatly appreciated, as I don't seem to find out much about it in the states .
Looking forward to hearing from you-be well, and thanks again! _________________ Every journey begins with a single step...Diane
Posted: Mon Apr 05, 2004 6:48 am Post subject: Caprivax
I am trying to get more informaiton for my Mother on Aimspro who is a MS Sufferer - I would like to know if you can buy direct and if so how. I have looked at the Daval Website but no joy ...[/u]
Posted: Tue Apr 06, 2004 2:14 am Post subject: Aimspro
Thank you for your response it was very kind of you to take the time. I am based in England and I've heard of Dr Davis but thank you for the name of Dalgleish - very handy to know - I will definitely go down that route
Well thank you once again and if you or anybody else can enlighten me further please do - I need enlightening!
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
).
Living in the states, as I do, the only info I can get is doing a search on here 
.
...does this mean that we will no longer have "Caprivax" but WILL HAVE "Aimspro"?? Do you know the date of the article you posted??
), and found that veterinarians have been using this for some time, as a vaccine for goats!
