EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Apr 27, 2008 Posts: 144 Location: Los Angeles, CA
Posted: Thu May 14, 2009 9:35 pm Post subject: IPOP/HIPOP Post-chemo update
So, just an update.
I went to IPOP on Monday and Tuesday. My counts were still good (white counts and neuts in the 5000 range). Had off on Wednesday. Went in today (Thursday) and my counts are in the 2200 range. Everything else looks good. They removed the two little stitches.
I'm off from IPOP tomorrow (Friday)....and if on Saturday my counts are good (meaning I don't need any transfusions or anything), I will again be off on Sunday. On Monday I start the growth factor and so no more days off.
They were going to start the growth factor on Saturday, as per protocol (start on a certain day post chemo)...but I asked that be changed to be done when my numbers actually hit zero - as last time, I didn't hit zero. Now, none of us can say that that is why I reactivated and needed a redose.......but.....since I'm here doing it again - and it's not part of a trial, why not alter it. Maybe Dr. Brodsky and my NP are just humoring me, but that's okay, I'll take it. Makes sense to me to make sure all the buggers are out of me, ya know?
Everything is going smoothly and no ill effects. Rarely I feel queasy after eating, but not often and nothing major. I can't complain (except for the fact that once again I didn't get sick! ha ha).
My thought is - this time it will get everything!!
I'm preparing to feel weaker and more tired over the next few days as my numbers tank....and that's okay. Though, I wonder how much more tired one could possibly be - I'm zonked all the time! Provigil and Daytrana are having a hard time helping me hold up my head all day. But....the HiCy will kick in soon, I will be bald, but I'll have my energy back I soon I hope!!
Hey Kari,
It was 4 days post HiCy before they gave me the growth factor. I was -0 WBC a week after HiCy. when your numbers bottom out you will be the weakest you ever felt. If you remember I had to be readmited to JH because of the fever and there was no way I was going to make it back and forth to the hospital everyday in the state of health I was in. When your immune system is gone you will know it!!
I agree with Chris. I would be surprised if you didn't pop a neutropenic fever this time when you come back online. However, once you are online you will start to feel better!
Seems kind of naive to disagree with the researchers but it's nothing more than obviousness and common sense that it's essential for your counts to zero out or else your risks and efforts have accomplished nothing more than a higher than normal degree of suppression which might hold MS off a bit, but isn't worth what you've gone through.....twice.
Bob
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no single life experience-- like having MS-- defines a person. EP now covers over 5 million true stories about every possible life experience. Find and share yours!
Forum FAQ
Search
Usergroups
Profile
Log in
