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View topic - Lamotrigine trial results | ThisIsMS.com
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Lamotrigine trial results

 
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Muu
Family Elder


Joined: Aug 01, 2006
Posts: 185
Location: London
PostPosted: Sat May 23, 2009 8:31 am    Post subject: Lamotrigine trial results Reply with quote
Hi Guys,
yes, i have been quiet for a while but all has been well. In the same week that I received a blue badge (hurrah!) I also received a letter from the Consultant that was overseeing the Lamotrigine trial that I was on for 2 years and that finshed last Autumn. It turns out that I was in the 50% on the placebo, which is what I'd suspected all along. It was a double blind trial so the doctors did not know that either. That was no surprise although the overall results sadly were. It appears that Lamotrigine does not have any significant affect on slowing down axonal deterioration for those like me who have SPMS and that the drug will not be recommended as a treatment. Oh well. Back to the drawing board....
Muu
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westwood
Getting to Know You...


Joined: Mar 22, 2009
Posts: 17
PostPosted: Sat May 23, 2009 10:44 am    Post subject: Reply with quote
Hi there Muu. I went to see my consultant(in England) too and he told me about Lamotrigine and once the trials were reported then he woud be in touch.

Felt a glimmer of hope but from your post it seems that this drug will not be an option.

Thanks for taking part in the trials, sorry the news wasnt better.
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dignan
Family Elder


Joined: Aug 12, 2004
Posts: 1516
PostPosted: Sat May 23, 2009 11:37 am    Post subject: Reply with quote
Muu, I'm sorry to hear that the drug didn't work, but thank you for taking part in the trial. Fingers crossed for good dirucotide results this summer...
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 4759
PostPosted: Sat May 23, 2009 12:47 pm    Post subject: Reply with quote
Yes, thanks for your involvement in the clinical trial Muu.

I'm sorry things didn't go better but I'm glad it's over and that you are still fairly well to try something else.

Bob
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Muu
Family Elder


Joined: Aug 01, 2006
Posts: 185
Location: London
PostPosted: Sun May 24, 2009 3:06 pm    Post subject: Reply with quote
Thank you all for your messages. I was pleased to be involved in the trial and had first class care throughout. I would do the same again. My view is that funding for trials is scarce and therefore there must be some scientific basis for conducting it. Nothing ventured, nothing gained and all that. It is a shame that it didn't work out - for all of us. I'm sorry if i disappointed anyone by jumping the gun on the results. With very best wishes to you all.
Muu
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