When to start Ldn

jellyphish · Newbie Joined: May 29, 2009 Posts: 2

I have been recently diagnosis with MS (though have had symptoms for a couple of years, but never underestimate the power of denial huh?), i am making my plan now as to how to best deal with this. Of course, i will do everything in the natural kingdom, diet, supplements and everything that has shown to be of benefit (including acupuncture, chiropractic and massage). But i also want to use chemicals, though sparingly. I have read through much of the literature concerning many of the chemical drugs used for MS and have found the methods lacking what i would call necessary for the use of such strong medication. The only drug that i have read strong anecdotal response has been LDN, but as we are all our own doctors here, how to proceed? Of course i'll approach my GP about it and then go from there (not sure my crappy insurance will cover it, not sure he will be willing to rx it, etc...), but also, i'm confused if this is the best drug to start as a first line? It certainly appears better than rat poison (aka chemotherapy) and the -ferons that were fast tracked based upon previously poorly designed studies. If anyone has advice i would appreciate it...

LR1234 · Posted: Fri May 29, 2009 4:19 pm Post subject:

I have just started on LDN. I have been on it for 2 weeks. It has made me feel quite sick and some of my symptoms have increased slightly (numbness) but I am going to stick with it as my understanding is it might get worse before getting better. I do feel the MS has lifted slightly I feel more like me despite the increase of numbness.

Be careful about chiropractors/massages etc, I have had these done over the years and not had any negative reactions until recently when 2 attacks seemed to co-incide with me having a heavy massage and seeing a chiropractor.

I do the Best Bet diet and take supplements. I have had MS for 14 years (dx Jan 09) (and been on the diet for most of that time with supplements) and am still minimally effected in that I only really suffer from sensory problems and weakness during relapses.

NHE · Volunteer Moderator Joined: Nov 21, 2004 Posts: 1221

LR1234 · Posted: Mon Jun 01, 2009 6:22 am Post subject:

I was clicked quite a bit with both those massages and one resulted in bruising so that could have been what triggered things. I love massages and find them relaxing, I think if I have them done again I will make sure they ease off on the pressure and the manipulation.

By the way doing very well on the LDN feel a lot better. I am on a dose of 1ml only at present and I can already feel a difference!