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RedPenguins Family Elder

Joined: Apr 27, 2008 Posts: 144 Location: Los Angeles, CA
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Posted: Mon May 25, 2009 7:49 pm Post subject: vitamin D? |
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Does anyone know how much vitamin D (and what kind? d2 or d3??) the people who did hicy @ Rush are currently taking?
thanks,
keri |
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chrishasms Family Elder

Joined: Sep 15, 2006 Posts: 1091
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Posted: Tue May 26, 2009 10:32 am Post subject: |
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I use the D3 or as my wife puts it, "The good stuff."
How long was your turn around time Keri? Day in to release? |
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indigoinmotion Family Member

Joined: May 21, 2009 Posts: 35
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Posted: Tue May 26, 2009 5:21 pm Post subject: |
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Hi Chris,
I have been following your journey as well as Kerri's. You guys have given me a lot of hope for the future of ms treatment. I love reading about your progress! Maybe one day I'll join your ranks and consult a dr. at John Hopkins.
How much D3 do you take a day? I have been taking up to 10, 000 iu and it seems to be helping.
Thanks, karen: ) |
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Curious11 Newbie


Joined: Mar 11, 2009 Posts: 2
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Posted: Wed May 27, 2009 5:51 am Post subject: |
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| I was told to take 5,000 IU's of Vitamin D (type was not specified) a day from my Neuro at Rush. |
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chrishasms Family Elder

Joined: Sep 15, 2006 Posts: 1091
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Posted: Wed May 27, 2009 11:08 am Post subject: |
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My wife as well as Jimmylegs will tell you the best kind and most easily absorbed is the D3.
Have you Vitamin D tested because more than likely it is low. Your GP will give you some killer Vitamin d to get you up to a normal range.
I take 2000iu a day at night for best absorption. This keeps me near 40. |
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prof8 Family Elder

Joined: Jul 14, 2008 Posts: 183
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Posted: Thu May 28, 2009 9:30 pm Post subject: |
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| I did not have HiCy. However, I take 4,000 a day now. My big MS clinic likes to see their MS patients in the 60-80 range for Vitamin D. My regular GP said always take it with food as it is better absorbed with fat (even saltine crackers will do for "fat"). |
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jimmylegs Family Elder

Joined: Mar 12, 2006 Posts: 3681
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Posted: Fri May 29, 2009 7:49 am Post subject: |
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| fyi you need to keep you magnesium and calcium intake up there to match 4000IU per day d3. i took d3 with mag and cal for oh, over a year i guess, but i did the mag aspect wrong at first and ended up having troubles because of it. |
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jbro Getting to Know You...

Joined: Jun 09, 2009 Posts: 22
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Posted: Tue Jun 09, 2009 11:08 am Post subject: I just started at a research hospital |
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Hello everybody. I have had chroinic progressive MS [not sure if primary or secondary] for 23 years. I was turned down by JH for the Revimmune procedure. I just started at a research hospital, Wash U. in StL, and I am not sure of what current studies are the most promising, and whether they are available to people with progressive, rather than R-R MS.
The JH people said Revimmune would not be good for me b/c I am too far along, but I have always wondered if it had more to do with the fact that I am not R-R, which studies seem to prefer.
One other question. I have noticed people here writing about vitamin D. Is that something everybody with MS shopuld be taking or is that to fight the side effects of a study process?[/b] |
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daniel Family Member

Joined: May 20, 2009 Posts: 96 Location: Toronto, Canada
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Posted: Sun Jun 14, 2009 11:13 am Post subject: Re: I just started at a research hospital |
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| jbro wrote: |
...snip...
One other question. I have noticed people here writing about vitamin D. Is that something everybody with MS shopuld be taking or is that to fight the side effects of a study process? |
It seems that everyone with MS should be taking D3. My neurologist was/is running studies on vitamin D and it seems to cut down on relapses: http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses
Edit: By everyone taking vitamin D, I mean everyone should get their blood levels tested and take enough supplements/get enough sunlight/tanning booth time to raise their levels to between 50–80 ng/mL (or 125–200 nM/L) as per http://www.vitamindcouncil.org/ |
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AJWANTSACURE Family Member

Joined: Jan 11, 2010 Posts: 26 Location: Raleigh, NC
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Posted: Fri Feb 26, 2010 6:20 am Post subject: |
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my neurologist gave me a script for vit D3 - 50,000 iu once a weeek. _________________ <strong>STAY IN THE FIGHT TO FIND A CURE FOR MS</strong> |
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tashenoir Newbie


Joined: Feb 13, 2010 Posts: 5
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Posted: Tue Mar 02, 2010 7:36 pm Post subject: |
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5000 IU of D3.
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