EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Please fish around the post and see if you can get it to show you the results-- if not please post again and we'll try and recreate what you're seeing. From our end everything looks ok
Posted: Tue Mar 09, 2004 7:05 pm Post subject: Thank You!
Those are the same results I am seeing...I was expecting to see more replies hence my thinking it was no longer active. I am now surprised that there are so few replies! Perhaps more will come with time.
Thank you again...
vf _________________ < March 20, 2004 = I want my life back *sigh*
> March 20, 2004 = ...day one on alertec = getting my life back? *grin*
I'm the one who voted for acetyl l carnitine (ALCAR), but didn't think I could give you much info because I'm a "newbie"
On Avonex 3 mos., and at this time I am only taking 1/4th the recommended dose in the study (1 500 mg pill a day).
Problem is, I've had a lot going on and can't really say if the ALCAR is making me less fatigued.
About 3 days after I started compounded HRT, ALCAR and alpha lipoic acid (both on pharmacist's recommendation when I picked up the HRT), my neurologist shocked me by putting me oral steroids when I called to report my first relapse.
It's anybody's guess what's contributed to my feeling better.
I think the alpha lipoic acid is helping numbness, burning, tingling and MS hug of my left leg.
I'm also more alert and walking better (my worst symptom).
As a newbie it looks like I could end up taking a lot of drugs for a lot of different symptoms at some point, so I'm trying hard to stay away from anything but the Avonex until I have too.
That's the reason I'm sticking with ALCAR for now. My pharmacist recommended it as "neuroprotective" and then this study came out.
Hope this helps. Let us know what you decide and if it works.
I find this whole MS stuff to be mind boggling at best or worst
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
I've had a lot going on and can't really say if the ALCAR is making me less fatigued.
shocked me by putting me oral steroids when I called to report my first relapse.
It's anybody's guess what's contributed to my feeling better. 
or worst 