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View topic - Surgery complication that I had - verified by another | ThisIsMS.com
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Surgery complication that I had - verified by another
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Post new topic   Reply to topic    ThisIsMS.com Forum Index -> Chronic Cerebrospinal Venous Insufficiency (CCSVI)
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Sharon
Family Elder


Joined: Nov 08, 2004
Posts: 1202
Location: Colorado

PostPosted: Thu Oct 01, 2009 2:18 pm    Post subject: Reply with quote

Arcee wrote
Quote:
Hmm, my stent is pretty high up and it hasn't been a problem for me...

Good for you!
I think what happens is the high stents are getting into a more compromised area of the neck for some of us. Anatomically we just do not have the space. You probably had some extra room and the nerves and muscles were not agitated during surgery. Also, I think Dake would have been using the smaller stent by the time you had the surgery.

Sharon
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Arcee
Family Elder


Joined: Jan 06, 2005
Posts: 338
Location: Massachusetts, USA

PostPosted: Thu Oct 01, 2009 2:42 pm    Post subject: Reply with quote

Lucky indeed. (And very lucky that I got to meet you there, Lew!)

I was #15 and confirmed with Dr. Dake that the 7mm he used in me is the smallest one he has been using. The thing is long though! I was kind of surprised when I saw it on my follow up exam.
_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Out2l8
Getting to Know You...


Joined: Sep 29, 2009
Posts: 16

PostPosted: Thu Oct 01, 2009 2:54 pm    Post subject: Reply with quote

Arcee wrote:
I was kind of surprised when I saw it on my follow up exam.
Did he hand you a sample stent to look at, or show you an x-ray of the stent installed in your neck?

Not that it matters, just curious
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Arcee
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Joined: Jan 06, 2005
Posts: 338
Location: Massachusetts, USA

PostPosted: Thu Oct 01, 2009 3:01 pm    Post subject: Reply with quote

This actually was with a Doctor in Boston who oversaw the MRVs and MRIs so I believe it was an MRV shot that kind of looks like an xray but then you can see the blood going through. The stent is long enough that you can see it easily.
_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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magoo
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Joined: Sep 11, 2009
Posts: 398
Location: Charlotte, NC

PostPosted: Thu Oct 01, 2009 4:16 pm    Post subject: Reply with quote

Just wanted to chime in and say that when Dr. Dake called me on Monday he mentioned adjusting the stent size. He said he thought bigger was better in the beginning. He has since learned from those of you having these nerve problems, that may not be the way to go. He said now he is adjusting the size of the stents. He didn't say it wouldn't happen, he just said he was refining the procedure.
_________________
Rhonda~~
Diag. with severe stenosis in the jugular veins.(Stanford-Dr. Dake)10/19/09 Stents placed,pressure gradients obliterated,collateral pattern no longer filling,both veins normal. Feeling healthy & nearly all MS symptoms gone.
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