loriyas antibiotic log

notasperfectasyou · Posted: Thu Feb 04, 2010 2:34 pm Post subject:

Hi Lori,

This is really wonderful to hear. Congratulations on feeling good; Congratulations on backing that up with tests.

I will have to catchup with you at CPn Help. But, I was wondering if Dr. S talked with you about caffeine at all. We had a pretty good discussion about it and I will post soon about it, but I was wondering if you talked with him about it too.

Isn't 2 years like a WoW thing? Think of all those pulses and how good and bad you have felt. It truely is a rollercoaster.

HOORAY FOR LORI!!!!!

Ken
_________________
My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

Loriyas · Posted: Thu Jun 24, 2010 6:00 pm Post subject: 27th pulse

I finished my most recent pulse (27th) of Tindamax yesterday. This is the first time I have been able to make it to 10 days, as was suggested by Dr. S. in February. Tindamax make me tired and I was never able to deal with it for more than 7 or 8 days. This time I just made myself do it. Same response: body aches the 3rd or 4th day, more tired, some headache. That has not changed since I started this.

Interestingly, one weird thing occurs occasionally. I get HUGE hives. But I can't relate it to any antibioticsi, supplementsi or other medications. It is not from laundry detergent etc or from the environment (plants, trees). Twice in the month of May I had what I thought was the "flu". Body aches, fever, felt bad. After about two days of this I started developing hives, along with swelling around one of my eyes. Now that I think about it my ears were hot, itchy and seemed swollen also. Did a course of prednisone which of course made hives go away. Also taking Zyrtec. I saw an immunologist/allergist who ordered a ton of blood work. Took 10 vials of blood. I am going today to get results. I know this has nothing to do with antibiotics because this has occurred before I even started antibiotic protocol. I will post with the results.

___________________________________________________________

MunchMan · Newbie Joined: Jun 11, 2010 Posts: 1

Hi Loriyas,

I'm pretty new to the scene and recently been diagnosed with MS and have a strong correlation with symptoms that many have experienced. You speak about hives when you are sick. I too get these and continuiously get them especially in the last 3 years, and they are bad; before it would be every so often. I also noticed in my research that people with a bacterial infection like CPn or Lyme get these.

I've done alot of thinking about this and have come up with a few theories and I hope for anyone to put in there thoughts:

1. A hive is an autoimmune response to a localized manifestation of the bacterial that has been killed in the skin and the immune system reacts to it to "sweep" up the left over mess. If this is the case, I would consider it as a "Skin-Herx". The reason I think this could be possible is we know that CPn can live in every cell. Many cases of my hives have been when I apply pressure to the area or heat, of course I'm not on antibiotics yet so other experiences I can't relate to yet. Is it possible in a skin pressure situation for the infected cell to "pop" or prematurely die releasing a reticular body that can't survive in the extracelluar world and die? Effect- Skin Herx.
If it is heat caused, the same applies but the CPn dies because of heat. Effect - Skin Herx

BTW- I started the NAC test 2 Friday's ago: I got sick with URI and all the others symptoms and I also got hives. I didn't know what to expect, but I have been experiencing hives when I feel like I'm having a die-off effect/ or maybe a possible flair(I think what happened to me was a Herx, not a flair; things were bad similiar to spoken Herx's).

2. This theory could be very plausible when you understand how CPn causes a weakness in vien structure. You "bleed" blood through your viens into the skin causing the hive. This can correlate with pressure and heat as well.

Either way, I hope your Dr. can help you with them. I have always been told to take an anti-histamine for mine and it does work. It just seems like there is more there, especially since it seems like almost everyone here has them and if you look at the Lyme boards they have them too.

Best of Luck and I'm glad you're doing better!!

MunchMan