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View topic - Chronic Cerebrospinal Venous Insufficiency (CCSVI)- | ThisIsMS.com
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Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
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taxi
Getting to Know You...


Joined: Jan 17, 2010
Posts: 24
Location: Melbourne, Australia

PostPosted: Sun Feb 07, 2010 2:32 am    Post subject: Reply with quote

Last comment for today! (no promises Wink )

I've just uploaded a Word version of the document, so if you want to modify it for your own needs then it's easy to do so.

Same location, http://public.me.com/inomial

Cheers
Mark
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gauchito
Getting to Know You...


Joined: Feb 06, 2010
Posts: 14

PostPosted: Sun Feb 07, 2010 2:30 pm    Post subject: Reply with quote

Thx Mark. Is there a chance to have the file some other way.I am having trouble with MobilelMe?
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fogdweller
Family Elder


Joined: Dec 09, 2009
Posts: 239

PostPosted: Sun Feb 07, 2010 4:20 pm    Post subject: Reply with quote

I was having problems too, lack of authority or something.

I copied the entire document, pasted it to a new WORD document, and saved that. It worked fine for me. Good luck.
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fogdweller
Family Elder


Joined: Dec 09, 2009
Posts: 239

PostPosted: Sun Feb 07, 2010 4:22 pm    Post subject: Reply with quote

BTW, Taxi, don't you
Aussie's watch the Supper Bowl? I realize it is a different kind of football and all ...
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taxi
Getting to Know You...


Joined: Jan 17, 2010
Posts: 24
Location: Melbourne, Australia

PostPosted: Sun Feb 07, 2010 10:31 pm    Post subject: Reply with quote

hi folks

anyone who can't get to the documents via mobile me should just PM me with your email address and I'll shoot it through to you.

I'll set it up on a better host when i have a chance...

fogdweller wrote:
BTW, Taxi, don't you
Aussie's watch the Supper Bowl? I realize it is a different kind of football and all ...


super bowl? isn't that something you put a big salad in? Razz

some people here watch it but it's not a big deal at all. maybe a couple of pubs have it on the big screen. but nobody runs around afterwards tooting their car horns along Chapel street like they do after the World Cup or the AFL grand final - now that's real football!! Smile

cheers
Mark
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fogdweller
Family Elder


Joined: Dec 09, 2009
Posts: 239

PostPosted: Mon Feb 08, 2010 11:47 am    Post subject: Analogy Reply with quote

When I was in college, we had a litle bathroom with a plywood floor that had press-on tiles. When one of the drains backed up, water would flow onto the floor, the tiles would curl and come off, and the plywood got moldy.

Zamboni proposes that we unstop the drains. Maks sense to me. So far we have been studying the glue on the tiles, the plywood, the type of mold, even the manufacturer of the tiles.

Lets unstop the drains first. Then we can get new tiles.
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jackD
Family Elder


Joined: May 25, 2006
Posts: 133
Location: Near Wash DC

PostPosted: Wed Feb 17, 2010 4:02 pm    Post subject: for all you tree lovers... Reply with quote

I wonder??

jackD


Angiology. 2006 Oct-Nov;57(5):569-76.

Rapid relief of signs/symptoms in chronic venous microangiopathy with pycnogenol: a prospective, controlled study.

Cesarone MR, Belcaro G, Rohdewald P, Pellegrini L, Ledda A, Vinciguerra G, Ricci A, Gizzi G, Ippolito E, Fano F, Dugall M, Acerbi G, Cacchio M, Di Renzo A, Hosoi M, Stuard S, Corsi M.

Irvine2 Vascular Lab and Physiology, Department of Biomedical Sciences, G 'Annunzio, Chieti-Pescara University, San Valentino Vascular Screening Project, Faculty of Motory Sciences, L'Aquila University, Italy.

Erratum in:

Angiology. 2008 Jun-Jul;59(3):385.

The aim of this study was to investigate the clinical efficacy of oral Pycnogenol (Horphag Research Ltd, UK) in patients with severe chronic venous insufficiency.

Patients with severe venous hypertension (chronic venous insufficiency, ankle swelling) and history of venous ulcerations were treated with Pycnogenol.

Patients received oral Pycnogenol (50 mg capsules, 3 times daily for a total of 150 mg daily) for 8 weeks.

A group of 21 patients was included in the treatment group and 18 equivalent patients were observed as controls (no treatment during the observation period). All 21 patients (age 53 years; range, 42-60 years; M:F=11:10) in the treatment group completed the 8-week study. Also the 18 controls completed the follow-up period. There were no drop-outs. The average ambulatory venous pressure was 59.3 (SD 7.2; range 50-68) with a refilling time shorter than 10 seconds (average 7.6; SD 3). There were no differences in ambulatory venous pressure or refilling time between the treatment and control patients. The duration of the disease-from the first signs/symptoms-was on average 5.7 years (SD 2.1). At 4 and 8 weeks, in all Pycnogenol-treated subjects, microcirculatory and clinical evaluations indicated a progressive decrease in skin flux, indicating an improvement in the level of microangiopathy; a significant decrease in capillary filtration; a significant improvement in the symptomatic score; and a reduction in edema. There were no visible effects in controls.

In conclusion, this study confirms the fast clinical efficacy of Pycnogenol in patients with chronic venous insufficiency and venous microangiopathy.

The study indicates the significant clinical role of Pycnogenol in the management, treatment and control of this common clinical problem. The treatment may be also useful to prevent ulcerations by controlling the level of venous microangiopathy.

PMID: 17067979 [PubMed - indexed for MEDLINE]
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kenneb9
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Joined: Jan 07, 2010
Posts: 26
Location: California

PostPosted: Sat Feb 20, 2010 1:09 am    Post subject: ccsvi and General Electric (GE) Reply with quote

Woundn't it be great if MS patients got this attention
http://www.ge.com/innovation/vancouver/index.html?C_ID=HP
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1hotmama
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Newbie


Joined: Mar 18, 2010
Posts: 4
Location: Oregon. USA

PostPosted: Thu Apr 01, 2010 1:08 am    Post subject: skeptical neurologist Reply with quote

I asked my neurologist about Dr. Zamboni's research and he called it, "Zamboni's Balogna". I felt very patronized and was disappointed with his whole attitude. He was more concerned with talking me into trying tysabri which I turned out to be allergic to. He also suggested a !#$%! shrink because my headache never goes away.
Has anyone encountered this type of disbelief from our so called "educated" neurologists in the US? Question Question
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NHE
Volunteer Moderator


Joined: Nov 21, 2004
Posts: 1422

PostPosted: Thu Apr 01, 2010 2:43 am    Post subject: Re: skeptical neurologist Reply with quote

1hotmama wrote:
I asked my neurologist about Dr. Zamboni's research and he called it, "Zamboni's Balogna". I felt very patronized and was disappointed with his whole attitude. He was more concerned with talking me into trying tysabri which I turned out to be allergic to. He also suggested a !#$%! shrink because my headache never goes away.
Has anyone encountered this type of disbelief from our so called "educated" neurologists in the US? Question Question


It may be time to start shopping around for a new neurologist...

NHE
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WeWillBeatMS
Family Member


Joined: Feb 04, 2010
Posts: 42

PostPosted: Thu Apr 01, 2010 1:12 pm    Post subject: Reply with quote

There are absolutely neurologists out there that are open to discuss the soundness of the science behind CCSVI, even if it is not as "proven" as most of them would like to see. I happen to find one here locally in South Florida who has actually written the prescriptions for the transcranial doppler and also the MRV for me which I will have next week. There is also a neurologist at the University of South Florida in Tampa, Dr. Stanley Krolczyk, who went to Hamilton, Ontario on 2/7/10 to meet with Dr. Zamboni and the other doctors and researchers for the first annual CCSVI conference. Don't give up! This thing makes too much sense and has too much momentum for even the most stubborn neurologists to ignore forever. Also, I'm sorry to say this but there are too many neurologists who may have started out with the big intention of helping others but the money has them a little bit sidetracked, and what do they have to gain financially from CCSVI? A few more office visits maybe? Anyway do NOT give up 1hotmama.

WeWillBeatMS
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Hockeydad
Family Member


Joined: Mar 11, 2010
Posts: 56
Location: SW Ontario,Canada

PostPosted: Thu Apr 01, 2010 8:11 pm    Post subject: Reply with quote

Hello, I'm new to all of this as I've only been diagnosed for 2 months. I live in Toronto and the annual American Assoc of Neurologists' meeting takes place here in Toronto in a number of weeks. I"ve attached a link to highlighted presentations. All the major CCSVI doctors are coming here to present; Zamboni, Haacke, Zivadinov etc.
http://csvi-ms.net/en/content/american-academy-neurology-aan-annual-meeting-toronto-10-17-apr-2010
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cheerleader
Family Elder


Joined: Sep 11, 2007
Posts: 3208
Location: southern California

PostPosted: Thu Apr 01, 2010 8:33 pm    Post subject: Reply with quote

WeWill...agreed, there are many neuros interested in CCSVI. They tend to be younger, or more curious, or without many pharma affiliations... but even some of the old guard is getting interested. We can't paint them all with the same brush- but it takes some work to find them. Good for you.

Welcome, Hockey Dad-
thanks for the link to the meeting...lots of CCSVI information will be presented. I'd write more, but I just scrolled up and looked at NHE's new pic, and I think I'm started to seize Shocked
take care,
cheer
_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS
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harryp
Newbie
Newbie


Joined: Jan 17, 2010
Posts: 7
Location: Bangor N. Ireland

PostPosted: Fri Apr 02, 2010 12:38 pm    Post subject: Re: skeptical neurologist Reply with quote

1hotmama wrote:
I asked my neurologist about Dr. Zamboni's research and he called it, "Zamboni's Balogna". I felt very patronized and was disappointed with his whole attitude. He was more concerned with talking me into trying tysabri which I turned out to be allergic to. He also suggested a !#$%! shrink because my headache never goes away.
Has anyone encountered this type of disbelief from our so called "educated" neurologists in the US? Question Question

Hi hotmama,
Not only in the US here in Ireland my granddaughter (a First Class Honours Graduate) got the same response but we will have the last laugh when they all have to eat coke!!!
harryp
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Saskatoongal
Getting to Know You...


Joined: Mar 19, 2010
Posts: 10

PostPosted: Sun Apr 04, 2010 3:31 pm    Post subject: CCSVI testing Reply with quote

I am wondering has anyone received any testing or has knowledge of the CCSVI testing at the False Creek Health Clinic in BC. I have been doing research and sounds like an interesting place to see if one meets the criteria of CCSVI.
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