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View topic - 1 yr post HiCy (2nd round)...Great news! | ThisIsMS.com
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1 yr post HiCy (2nd round)...Great news!

 
Post new topic   Reply to topic    ThisIsMS.com Forum Index -> Revimmune (cyclophosphamide or cytoxan)
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RedPenguins
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Joined: Apr 27, 2008
Posts: 148
Location: Los Angeles, CA
PostPosted: Tue May 04, 2010 12:26 am    Post subject: 1 yr post HiCy (2nd round)...Great news! Reply with quote
Well, this board is mostly "dead" now...but figured I'd drop a quick update in case anyone ever stops by.

This week marks 1 year since I underwent a second course of HiCy. (first round 7/08, second 5/09). In this past year, I have not had symptoms or relapses.....prior to this, I had relapses every 2-3 months since being diagnosed 28 months ago.

I used Copaxone from June through February. I discontinued Copaxone because I was going to try to get pregnant.

I am happy to report I AM PREGNANT now....due on Thanksgiving - November 25, 2010!

Being that pregnant women are usually free from relapses anyhow, I am expecting the next 7 months to go smoothly. I guess the REAL test for HiCy will be in the first months post partum - as women have REALLY high rates of extreme relapses in the months after giving birth. Of course, I have faith in the HiCy and believe I will not have this happen (though obviously, the risk is still there)....I guess I only time will tell!

I continue to recommend this treatment.... Smile

Best of luck to everyone.

~Keri
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LR1234
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Joined: Feb 12, 2009
Posts: 1148
Location: London, UK
PostPosted: Tue May 04, 2010 3:22 am    Post subject: Reply with quote
Great news Keri!! So pleased for you x
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CureOrBust
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Joined: Jul 28, 2005
Posts: 2018
Location: Sydney, Australia
PostPosted: Tue May 04, 2010 5:24 am    Post subject: Reply with quote
congrats on both the pregnancy and the lack of relapses!

Any board on this website is only "dead" because people stop posting here.
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Squibbles
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Joined: Jan 15, 2010
Posts: 24
PostPosted: Tue May 11, 2010 8:16 am    Post subject: Reply with quote
Hi Keri

Really pleased for you... Smile

Do you know what is happening with trials for Revimmune? It seems that they have stopped?...
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chrishasms
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Joined: Sep 15, 2006
Posts: 1117
PostPosted: Tue May 11, 2010 12:48 pm    Post subject: Reply with quote
Awesome!!
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msgator
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Joined: Mar 18, 2010
Posts: 67
Location: USA
PostPosted: Sat May 15, 2010 6:26 pm    Post subject: Reply with quote
I nursed both my kids after pregnancy and did not experience the post pregnancy relapse after either delivery. Good luck to you. Make sure you take your vitamin D, a lot of prenatals contain very little and I am becoming more and more convinced that insufficient vitamin d in utero has some influence on MS. Wish I had figured that out before I had my kids, my daughter esp. since she is a May baby.
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ssmme
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Joined: Sep 23, 2007
Posts: 291
Location: Lexington, KY
PostPosted: Mon May 31, 2010 1:56 pm    Post subject: Reply with quote
Keri congratulations, having a baby is wonderful. So it took to rounds of treatment for you to see improvements? I'm currently in a clinical trial for campath but I want to keep any further progression at bay. I'm doing okay on Campath. I just had my 2nd dosing a couple of weeks ago and all my ms symptoms are back in unison. Did HiCy do that to you then subside?

Marcia
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