Neuro is reducing my Rebif to 22mcg

catfreak

Went back to the DR for my 3 month visit after starting Rebif. Told him all my new MS symptoms and about my fever and sweating. He decided to reduce my rebif shot to 22 mcg for the next 30 days to see if anything changes.

He put me on Mobic prior to my shots for the fever, a round of Prednisone for my other MS symptoms (I don't do well on steroids) and Provigil for my extreme fatigue.

My insurance refuses to pay for the Provigil.

Has anyone else had their Rebif lowered and how did it turn out?

Thanks for listening,'

CF
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oreo · Posted: Wed Aug 13, 2008 12:36 pm Post subject:

Yes, I've been on 22 for what seems like forever. When I started on Rebif I went the usual route, ramping up to full dose (44) during the usual length titration period.

However, after I stared Rebif, I also got myself referred to an MS clinic for continuing care. The Neuro there felt that my lesion load showing on MRI as well as my clinical symptoms put me in the 'mild' MS as opposed to 'severe' MS category. In addition he felt that some of the minor complaints I had could be Rebif related and not MS related. On my second visit, six months after the first, he cut me bacck to 22 and I have been there ever since. And doing very well I might add.
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Carpe Diem