Anyone in extension study feel like crap after vaccine?

ssmme

It's been a little over a week since I got my first vaccine and I feel like complete crapola. I'm not sick...no fever, sore throat, aches, pains, etc. Just extremely tired, no energy either mentally or physically, afraid to venture too far from the homestead.

I helped out at my kids' school on Friday by working in the cafeteria. I had to help the little kids make salads at the salad bar, wipe the tables off after each group ate, and served soup so the kids didn't get burned. It's not the most strenuous or difficult of tasks. At the end of lunch after all the kids leave you wipe down the tables one last time. During that time the school had a fire drill. We all went outside to wait it out but had to move away from the building per procedure so nevertheless I got to stand in 90 degrees with the sun beating straight down on me on hot asphalt for about 15 minutes. I had to get help walking back into the school after it was over. It's been well over 24 hours but I am SOOO tired still.

This kind of stuff does not usually happen to me in these kind of situations.

I feel like ever since I got the vaccine that I am extremely tired, lethargic, just want to sit around and do nothing. Even more so than just the typical ms fatigue.

Has anyone else felt this way after the vaccine? How about after the 2nd or 3rd vaccine? If you've experienced this how long does it last?

Any feedback would be helpful.

Thanks,
Marcia
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DX'd 08/2006, RRMS, currently in the Tovaxin extension study group.

Lyon · Posted: Sat Aug 23, 2008 1:00 pm Post subject:

Hi Marcia,

There isn't any hard science at this point, but it's been speculated that what you are experiencing might be considered something of a "vaccination effect" in which internally your body is expending a lot of energy.

Yes, my wife experienced the same thing you are talking about during the IIb but it wasn't certain that she was on the real thing, and even if she was it was impossible to separate that from the effects of the long day involved with injections.

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.

Loobie · Posted: Sat Aug 23, 2008 1:33 pm Post subject:

I've never felt anything at all.
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"

notasperfectasyou · Posted: Wed Sep 03, 2008 8:30 am Post subject: thought

I'm not fully up to speed on Tovaxin, but I'm interested in the topic. If the concept behind the vaccine is that the body is given new information on immune system targets - this was my understanding of what Tovaxin does, meaning you get back your own dead autoreactive cells and then your body learns to go after the live ones.

Well if your system is attacking stuff and you have large scale die off, your body is going to react by feeling very tied. you've got a small scale war going on in there after all. This happens when you get a Novantrone Infusion and it happems to ABX patients when we take Flagyl. Just thinking. Ken
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My Starting Point
Understanding MS 101: Doctor Talk and People Talk

Lyon · Posted: Wed Sep 03, 2008 1:06 pm Post subject: Re: thought

notasperfectasyou · Posted: Wed Sep 03, 2008 5:06 pm Post subject: gottcha

thanks for clearing that up. I watched the video on their website about a year ago then bought stock. I've lost much of the investment, but the news of a partnership today was exciting. Ken
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My Starting Point
Understanding MS 101: Doctor Talk and People Talk

Lyon · Posted: Wed Sep 03, 2008 5:15 pm Post subject:

I think it's going to be a win/win/win situation in that, among other advancements, the partnership may speed up the realization of the active factors responsible for MS and lead to an accurate test to confirm MS. Obviously any advancement in knowledge is also a "win" for those with MS.

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.