Review of the MRV with my untrained eye..the right IJV is significantly smaller, less than half the size of the left and the asociated sinus vein is almost imperceptable? This was the case in all files from all angles.
Took me a few days to post .. had to shed the dissapointment but i'm ready to carry on now...
my question... what do i do now?
Anyone have a similar experience?
I saw my GP and she is tryng to get me in to see a vascular surgeon.
Is that comment... "the azigos arch was blurry" acceptable??
This seems like a good next step. The vascular surgeon might interpret the same image differently. Good luck.PCakes wrote:I saw my GP and she is tryng to get me in to see a vascular surgeon.
- Family Elder
- Posts: 269
- Joined: Sat Nov 28, 2009 3:00 pm
- Location: Victoria, BC Canada
It sounds like your doc is working to find answers still and not accepting this as conclusive. That's good news.
Funny that we actually hope for negative test scans... I know what you mean and have been holding off going to FCSC for that reason. I don't how I would take the news that I was normal.
My doc said that a negative scan may simply mean "they can't locate CCSVI yet..." He's extremely optimistic about this whole new way of looking at MS.
We are many...I believe in this and that we will be heard.
I'm so annoying..
Lilsis..was great talking with you... good luck!
My chest MRV was normal, too. Oddly my stenoses were a standard CCSVI Type A: The azygos, just a little below the arch, the left IJV just behind the clavicle. Only a real venogram was able to depict the awful stenoses and made the surgeon shout: "Was your radiologist blind?"
Keep faith and go ahead asking for an answer based on 100% concrete evidence, be it positive or negative. An irresponsible answer of the kind "it is blurry", "I don't know", "I am not sure" is not an answer. Demand a scientific, 100% evidence based, answer.
Just to let you know my MRV was "Normal" and my Doppler was "Normal" in the UK
When I went to Poland Dr Simka thought he could see something in MRV that was suspicious and when he did the doppler he thought there was an issue. (but not reflux)
Anyway when I had the venogram the issues were very obvious. With loads of collaterals.
- my left jugular was visibly narrowed at the jaw level and perhaps is causing reflux (no usable doppler scan performed). (I'm still not sure if Dake would have recommended a stent if the procedure hadn't been halted the day I was out there)
- there may be stenoses not visible in the scan performed (perhaps transitory/posture dependent?)
- I might not have MS at all (I was only diagnosed in 2006 and had some weird stuff going into it including what seems to have been a Transient Ischemic Attack or mini-stroke)
- I might just have very mild MS - and mild/subtle reflux/stenoses
I am stilll very excited by CCSVI, but for me it looks like it'll be a long wait-n-see for the time being ...
I have looked at say MRV. Please look at Gingers at http://Iamsick
ofms.blogspot.com - done at False Creek. If people do not get
this info straight no professional people will want to come to this
board. An MRI does both MRA and MRV.
Also it clearly says on MS-Liberation page that you have 2
choices to possibly find CCSVI 1. MRV or Transcranial Doppler.
Please take a look at the scans if you have chance.
His group being
trained in advanced neuroimaging/diagnostics by the UBC team and
Dr S teaching his expertise. Sounds really constructive.
By the way the staff told me some of the techs are travelling
to Italy for the Escoate training in March.
- Similar Topics
- Last post