biogen and ccsvi

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
Leonard
Family Elder
Posts: 970
Joined: 9 years ago
Location: Brussels, Capital of Europe
Contact:

Post by Leonard » 9 years ago

Under the link below is the latest Biogen annual report on form 10-K, from December 2009. As I read it, the risk factors mentioned under Item 1A do not include or cover the possible impact of ccsvi. Can you believe it?!! I was just wondering how their investors will see this...

http://www.sec.gov/Archives/edgar/data/ ... 5e10vk.htm

User avatar
sbr487
Family Elder
Posts: 865
Joined: 9 years ago
Location: India
Contact:

Post by sbr487 » 9 years ago

Biogen is supposed to keep the investors informed about the market risks. In my opinion, CCSVI is the biggest risk for biogen. And they have not informed this to their share holders.

If they knew it and kept it hidden, they are culpable ...
If they did not know it, they are incompetent to ...

I hope somebody picks this up and confronts them ...

User avatar
whyRwehere
Family Elder
Posts: 917
Joined: 13 years ago
Contact:

Post by whyRwehere » 9 years ago

I suppose you could protest outside their Cambridge, Mass. office, with banners declaring that they are not being fair to patients or their investors by ignoring ccsvi. That should make it a bit more obvious to the investors, and Biogen couldn't deny knowing. What do you have to do for that? can you just show up, or do you need a permit?

User avatar
Mechanicallyinclined
Family Elder
Posts: 128
Joined: 9 years ago
Location: Manitoba Canada
Contact:

Post by Mechanicallyinclined » 9 years ago

It's so interesting that physicians are willing to treat MS patients with drugs when they know that there are serious side effects with some of them. When it comes to diagnosing and treating restrictions in veins, the medical system says " waite here people , this could kill you!"

User avatar
Loobie
Family Elder
Posts: 2197
Joined: 12 years ago
Location: Dayton, Ohio USA
Contact:

Post by Loobie » 9 years ago

Biogen may be presenting that front, but investors are worried. Go to Yahoo finance and look at all the talk about ccsvi and how it has people spooked. They can say what they want, but what investors actually DO will tell the tale.

User avatar
Vonna
Family Elder
Posts: 170
Joined: 9 years ago
Contact:

Post by Vonna » 9 years ago

At this point on the yahoo Biogen message board, people are trying to discount CCSVI. I believe we need to continue visiting the board and letting investors know.

Also, please visit here if you have not already done so:

http://ccsvivictory.club.officelive.com ... erest.aspx

Scroll down to the bottom on the Biogen page and notice the discrepancies that are on the Tysabri website as we speak!

cah, thanks for the link. I hadn't seen that last one, truly sickening.

In the pharmaceutical videos (link above), you will hear that they let, like 130,000 people die of heart attack while on Vioxx (I think this was the drug), before they pulled it off the market.

At least 50-60% (some think this number is more like 90%) of ALL people have the JC virus (dormant and harmless). Those with JC virus are at high risk to develop PML. This means that at least 50-60% of those that take Tysabri are at risk. It's just a matter of time!! The longer you take it, the higher your risk!! Yet, it's allowed to stay on the market!!

And, well, balloon angioplasty, that's just too risky...

If they are gonna play by the same rules, Tysabri would need to be pulled immediately, because it has not been studied past 2 years, yet people are taking it longer than two years and becoming severely disabled and dying! Are they gonna wait till 130,000 people die from Tysabri before they pull it? The risk is huge, yet, they advertise it's benefits.

User avatar
muse
Family Elder
Posts: 180
Joined: 9 years ago
Location: New Zealand
Contact:

Post by muse » 9 years ago

Brilliant thread Vonna, thanx! I try to do my best on our German Fb-site. http://www.facebook.com/pages/Venose-Mu ... 7471578700
Best Arne

User avatar
Vonna
Family Elder
Posts: 170
Joined: 9 years ago
Contact:

Post by Vonna » 9 years ago

Thank you Arne,
This is perfect! This is how we work together.

Vonna

User avatar
sbr487
Family Elder
Posts: 865
Joined: 9 years ago
Location: India
Contact:

Post by sbr487 » 9 years ago

Vonna & others,

Have you seen this. Looks like lot of effort put in here and importantly this has origins in UK ...

http://www.multiplesclerosissurgery.com ... edure.html

Regards,

User avatar
costumenastional
Family Elder
Posts: 743
Joined: 10 years ago
Location: Greece
Contact:

Post by costumenastional » 9 years ago

First thing my mother told me when we heard about CCSVI was : "my God i am afraid they will murder this Italian doctor".
I think this sums it up very well.

I am just happy they didn't see Zamboni coming on time. Now it s too late for them to react.

User avatar
Vonna
Family Elder
Posts: 170
Joined: 9 years ago
Contact:

Post by Vonna » 9 years ago

costum, Yes! I have thought this many times! I'm so glad the word got out in time!

User avatar
Vonna
Family Elder
Posts: 170
Joined: 9 years ago
Contact:

Post by Vonna » 9 years ago

Sbr, Yes, I do have this site on the CCSVI Worldwide Victory site. It's a good one!

Post Reply
  • Similar Topics
    Replies
    Views
    Last post