Your point is well-taken.
Although the Alliance is formed and the site is being built by the group of Tims members, our Board of Directors and Advisory Board satisfies the need for outside professional participation.
We are working directly with the medical community in the US who are inivolved in CCSVI research, diagnosis and treatment and the phone is ringing and the emails are coming from professionals looking to team up.
We've been quietly active behind the scenes to build the infrastructure that the group needs to be effective. Our goal is to do the right thing, in a professional way.
From where i stand, i really cant do much. However it would be a priviledge for me to help anyway i can.
I dont know if CCSVI applies to me yet, sure hope it does, but i know that many patients will experience relief of their symptoms to say the least.
If it wasnt for you this would probably have not been possible.
Meeting people like you makes me proud i am human.
Gongratulations Cheerleader. You are a woman of steel.
By the way, can you ask Jeff if he has ever used the FL Studio program for creating music? Since diagnosis i am taking some serious time doing just that and i can say that making music ROCKKKKSSS
RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12
Late Stage Lyme - 12/10
Too many meds to list!!
Remember, today is the tomorrow you worried about yesterday..
Yasmeen Sayeed. B.Sc, DHM, MBA
President & CEO
Surgical Tourism Canada Inc.
Surrey. BC. V3S1Y8
Tel: 1-877-871-4315( Toll Free) , 604-575-4316
Thank you to all involved in "birthing" this wonderful baby. It's taken quite a few dedicated mid-wives to get this done. She will make history and I feel privileged to be able to watch the delivery.
If it wasn't for all of you wonderful folks and your passion for getting the information about CCSVI accurate and straight forward the CCSVI message would not have carried so far so fast.
I’m indebted to all of Tims as well, I feel I’ve made friends here and have found commonality and understanding that surpasses the love and support of family and personal friends.
I now have a diagnosis of Congenitally Malformed Jugular Valves. Ya Hoo! I’m a candidate for the “Liberation Treatment”!!!!!
By winter of 2010 I fully expect to have warmer hands and feet and to have left the land of fog behind me!!!!
Thanks Tims member,
Thanks again and rock on!
- Family Elder
- Posts: 5359
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
- Been thanked: 1 time
Costume- Jeff uses Logic and protools for music programs. Glad you're rocking out!
Waken- business experience is appreciated. Send an e-mail thru the ccsvi.org website
jenf and jozee....CCSVI Alliance is all about self-empowerment
The response since last night has been wonderful- thanks, everyone!
dx dual jugular vein stenosis (CCSVI) 4/09
Yes, congratulations! Are there similar 'Alliances' outside of the USA? Australasia, perhaps? I would do whatever I could to assist.PCakes wrote:Congratulations and good luck!! Will the 'Alliance' be available to those of us outside the U.S. A. ? I will be a big fan regardless..
- Similar Topics
- Last post
- 0 Replies
- 552 Views
Last post by Cece
Sun Dec 16, 2018 12:25 pm
CCSVI in MS reviews
Last post by frodo « Fri Aug 17, 2018 2:07 am
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by frodo » Fri Aug 17, 2018 2:07 am » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 0 Replies
- 724 Views
Last post by frodo
Fri Aug 17, 2018 2:07 am
- 17 Replies
- 313 Views
Last post by jimmylegs
Fri Dec 21, 2018 3:33 pm
eye research supporting CCSVI
Last post by ThisIsMA « Thu Jan 10, 2019 12:28 amReplies: 1
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by Cece » Sun Dec 16, 2018 12:38 pm » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 1 Replies
- 619 Views
Last post by ThisIsMA
Thu Jan 10, 2019 12:28 am
Is CCSVI Atlanta legit???
Last post by ElliotB « Sat Mar 31, 2018 3:57 amReplies: 6
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by magoo » Tue Mar 27, 2018 6:40 am » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 6 Replies
- 1324 Views
Last post by ElliotB
Sat Mar 31, 2018 3:57 am