I 'd say the same things, more or less: i had my first procedure on June 2011 by Dr Sclafani.dlb wrote: David,
I would like to weigh in here if I could with a few comments. I was treated by Dr. Sclafani in July 2011. I had a terrible time wresting with the decision to have the treatment. I was diagnosed in 2005 after only 2 episodes, started Copaxone in 2006 & then have only had 1 exacerbation since. I had an EDSS of zero & I was (still am) a high functioning individual with MS. For me, the theory made so much sense because it explained all the things that I experienced for years before I started having symptoms of MS. So, the theory made sense to me, but on the other hand, I felt sooo well. It made my decision very difficult because felt like I was fixing something that wasn't broken. I am Canadian, so I went to Barrie, ON to have a doppler US to find out what that said & I met 3 of the criteria, so that helped me make the decision. The thing is, after I had a very successful treatment, I came to realize that I was having difficulties that I was not even aware of. The little things were creeping up on me slowly and over time I was just adjusting & coping. There are also things that were just a part of my life that I was experiencing long before I had MS (headaches, cold hand & feet, heat & cold intolerance). Those things I just lived with and did not know it was different for other people & could be different for me. I am so happy that I elected to seek treatment. It's early, but I really hope that improving that blood flow will help in delaying progression. That is ultimately why I made the choice. The bonus was in realizing such benefit. The shocker was that I had issues that I wasn't aware of until I had improved blood flow. Best wishes....
I was diagnosed on 2004 and i had two big relapses during this period with motion problems on both legs. My mean EDSS was good, i was working and (i was thinking that i was) doing a lot of things.
I remember myself writing down reports for the CCSVI survey for the first time. I was unconsciously cheating on the answers, trying to prove to myself i was healthier than i really was. Or maybe i was an optimist.
Then i had the angioplasty, and then things start to improve. It was only after some time that i realized that fatigue, heat intolerance, balance issues, headaches, chronic neck pain, bladder problems, cog fog, tinnitus, dysphagia, blurred vision, depression, cold feet and legs eczema, chronic morning sniffling were more severe as i thought and they were all actually CCSVI symptoms.
During all those years I was doing some kind of bargain and i was "adjusting and coping"
Now i'm doing the survey again and the truth is revealed.
I am ready to go back to Dr Sclafani for a follow up procedure.
I know he is going to see a different person.
David, best wishes!