Any info would be greatly appreciated.
Did you see the other threads on here re kostecki? You may find more info /former patients there...?
Anyway, good luck!
I was invited to go next week... maybe you're my replacement
I also have an appointment with Dr. Kostecki in May. I emailed him about the procedure and this is what he sent back
Phlebography is the first step of the procedure- we inject the contrast into the vein in order to see the stenosis or other disorders.
Travel agency has all details you need, I mean dates, times and so on. Of course we check azygos vein. Dr Kuczmik and me perform this procedure in the Silesia Medical University as a grant. Dr Waclaw Kuczmik is the best Polish interventional angiologist and vascular surgeon so you will be in a good hands You will not pay me nor dr Kuczmik but to Clinic. I am afraid you need cash in Polish currency.
Hope this puts your mind at ease
Greetings to you all and GOOD LUCK !!!
You have to get in touch with the travel agent they have all the information. They take care of all your accomodations, transfers ect.
> > mail: email@example.com
Hope this helps or maybe you have already done this now. Good Luck and please post after your procedure. I am 2 weeks later, travelling from Vancouver, Canada
Thanks for the encouraging post. I know a lot of people are travelling to Poland but most are seeing Dr. Simka. It is awesome to hear of someone that went to Dr. Kostecki for the procedure. How are you doing after the procedure? Did you stay at Hotel Arena?
Just noticed something else. Lynda's e-mail said pay in Zlotis. Am I to take the whole amount in Zlotis?
Did you pay the whole payment in Zlotis when you were there Michelle?
Lynda, I didn't stay at Hotel Arena because of a regrettable communication problem (my fault really ), but the others in my group did and only had positive comments about it (great people, room, food, etc.). I will stay there when I go back for my 3 months check-up !
As to how I'm doing, well I'm still waiting to see any improvements but I am so happy that I have been liberated ! Hopefully, the rest will follow...
AMcG I took Zlotys with me and paid after each exam in cash and the clinic the morning of the procedure. I'm not saying that it's the best way to go though...
Hope the situation with the "volcano ash cloud" will not keep you from flying there, so much more practical that the train...but the main point is to get there, right ?!?
Sorry that you haven't experienced much improvement. What condition are you currently in. I was diagnosed in December 2005, using a walker in 2006-2008, now in a scooter fulltime. I seem to be going downhill fairly quickly so time is of the essence for me. what did you have done in your procedure? I am hoping I will be able to notice some improvement right away.
Onward and upward
I was diagnosed in '96 and have been needing a walker for more than a year now and I totally agree that time is of the essence ! I'm trying to calm myself by thinking that it took me so long to get to where I'm now that my body might just need more time to function again... For sure, the earlier one gets treated, the better ! The good thing is that although you are not doing so well, you haven't had MS for that long, so I'm sure you will do more than fine and will feel improvements quickly !!!
I feel that i have had ms for quite some time. I was in a motorcycle accident in 1984 and have had tingling in my feet for about 15 years and feel i was misdiagnosed until major things started happening in 2005. I am just trying to be positive and pray that ccsvi is the answer. I agree, it took a long time for our bodies to get into this position so i am counting on time and our bodies healing themselves after being liberated.
Nice talking to you.