Global CCSVI Day- May 5th

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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cheerleader
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Global CCSVI Day- May 5th

Post by cheerleader » 8 years ago

Events happening in UK, Boston, Canada--
for information:

Link to Facebook:
http://www.facebook.com/pages/CCSVI-in- ... 0796282297

link to Liberation Day activities

Link to CCSVI locator for other local events--
http://ccsvi-ms.ning.com/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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cheerleader
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Post by cheerleader » 8 years ago

Watch Canada AM "live" tomorrow morning to hear information about Liberation Day across Canada--

http://www.ctv.ca/canadaam/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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Post by cheerleader » 8 years ago

Here is Diana Price-CCSVI activist-speaking about her diagnosis with dual jugular stenosis. Rallies are being held around the world today--get involved-
CCSVI is a vascular condition, with neurological consequences. Treat the vascular disorder and separate treatment from research studies. Because dual jugular stenosis is a serious condition. (Ask Jeff...)
cheer

link to interview on CTV
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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Billmeik
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Post by Billmeik » 8 years ago

Image

Image[/img]

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whyRwehere
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Post by whyRwehere » 8 years ago

Thanks for the pictures...I wish I could have participated in something, but I do not know of anything organised in France and I do not know the "rules" about demonstrating here. Would have loved to have taken a stand, though.

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Post by Motiak » 8 years ago

Whoever invented Cinco de Mayo is going to be furious that we took his day. Just kidding :D.

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Post by Cece » 8 years ago

There's a picture in this ctv article that shows the size of the crowd:

http://www.cbc.ca/canada/story/2010/05/ ... llies.html
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

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Post by whyRwehere » 8 years ago

I notice the Nova Scotia politition would not be swayed...she said no other province was doing the testing....well what is she a sheep? Is that all that is necessary to get her to act? Move the demonstration to in front of her house.

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Billmeik
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Post by Billmeik » 8 years ago

just saw coverage on the bc cbc news. Not national but still

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TFau
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Post by TFau » 8 years ago

Great job everybody! It's very exciting to see!

It's so frustrating hearing the same old thing though - "needs to be proven". There have to be other ways to prove effectiveness than the old large-scale-double-blind-gosh-someone may only think that they don't need to sleep 16 hours a day anymore but it may be placebo-trial. For example, reports from treated patients should be documented by a research center now.

Incidentally, the Andy Weiler quoted in the CBC article I believe is the same person who started out as a news reporter in my small home-town in Ontario, nor has he reported on health for very long. I'm sure that he does not have a science background of any kind. Why is he sounding so authoritative about evidence-based medicine? I kind of thought he was a twerp when he was on TV, so it irked me to hear his comments. Just a personal bias, I guess.

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Post by muse » 8 years ago

Image

..that's just amazing! Many thanx to WaYnE! http://www.facebook.com/ccsvi.ms.toronto.canada
Last edited by muse 8 years ago, edited 1 time in total.

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Post by mommyg » 8 years ago

I'm from Nova Scoita and I know who I won't be voting for in the next election!!


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whyRwehere
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Post by whyRwehere » 8 years ago

So, what happened in Boston, or is that on a different day?

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Post by cheerleader » 8 years ago

Boston had a rally on Beacon Hill as part of an MS awareness day. There was no press, but a group handed out information cards to attendees at the NMMS event, from Facebook-
Wearing our shirts and holding signs, giving out CCSVI cards and spreading the good word on CCSVI!
We got a great reception from the MS Society and found the fellow MSers and other attendees thirsty for the knowledge of CCVSI!
Spoke to Legislators and made some great connections with others here in Boston!
I also had the Kuwait information to hand-out and 2 page CCSVI info!
No media but the word is getting out!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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