Hell, for all we know, MS/CCSVI could be triggered from Lyme, or perhaps with lack of feeling, a tick bite could go undetected more easily.
The point is, if you do have Lyme Disease you need to be properly tested and treated. If you rule that out, then you know it must be something else, and can confidently pursue MS treatments and/or CCSVI treatments.
If we had known about the Lyme disease befofre we made our trek to Poland we could have saved about $10,000 and 5 years of MS treatments which don't do very much. I'm only hoping to save other hassle, money, and suffering.
the presence of the die off which made the exact neuro symptom recur, was significant as to the etiology.
also the co-infections in the tick are often worse than the lyme bacteria. there are protozoa, other bacteria and with MS, viruses are always involved. it is very complex when it is chronic.
i treated babesia (malaria-typed protozoa) for the last 10 months and went from constant night sweats and more and hyperthyroidism to feeling cold in Colorado winter and taking half the thyroid medication.
it is no an easy path, but i hope it helps prevent restenosis, if i can ever get liberated. BTW, it is interesting to me that the die off came out my cheeks and chest near arm pits. they felt like sand paper for months. i used many binding agents and finally it is mostly clear. my heat intolerance is so much better.
as it was said earlier, lyme is another paradigm and there are those who get very threatened and angry from mentioning it, not unlike CCSVI, but probably more so. CCSVI, to me presents more black and white than lyme borreliosis.
See, the very definition of MS is not the definition of illness, but a definition of symptoms - presence Multiple Scleras (aka - lesions).1hunter wrote:My lyme dr said MS is actually late stage lyme... I dont believe that but i do believe some people that think they have MS actually have Lyme....but i think some long term lyme people that are told have they have Lyme actually have MS
Can Lyme cause multiple scleras? Definitely. Can CCSVI cause multiple scleras? You bet.
I think we are slowly peeling the mystery onion of the causes for Multiple Sclerosis.
Alex, you seem to be ahead of the game. Where as CCSVI testing was my first step to trying to figure out this MS puzzle and I am looking into Lyme only now, you are already looking into both.aliyalex wrote:after following my body for these years with different lyme protocols, i understand how complex chronic neuro lyme is.
Thank you for sharing your experience.
I have both diagnoses. First, Quest tests (a few over 2 or 3 yrs.) found me negative for lyme. After a fall that messed my dominant hand forever, went to a nuero, dx was ms. A few years later, I went to a doc in CT, who turned out to be a "Lyme Literate". He sent blood test to a lab in CA (Igenex), which only tests for tick-borne pathogens.
Finally went to local lyme expert to get his opinion: Lyme, yes or no; MS, yes or no. In his opinion, both.
A friend who was being treated for lyme (not ms) had lesions in brain.
I have been on antibiotics for 6 yrs (oral 6yrs, IM 2yrs, IV for 4yrs).
Hope this helps with this confusing subject.
My lyme doctor is brilliant and a CNS specialist. He gets sent the cases that failed other lyme literate and neuro docs.
I was scheduled for my 1st Avonex injection and cancelled at the last minute. I just couldn't be comfortable suppressing my immune system. It was like when my car engine light came on, disconnecting the light. CCSVI made so much sense to me, filling in the blanks. My lyme doc was right there with me. He had no investment in being right, he just wanted me to get better. I was already 8.5 on EDSS. No time for complacency.
My brother has just started his treatment for Lyme! He is feeling better after the CCSVI procedure, with more energy and less brain fog than before. He is able to drop some of his meds for energy and is doing great. I'll update when we know more about how his Lyme treatment is going!
http://www.resultsrna.com/products/acs_ ... orferi.php
http://excessive-zinc-causes-multiple-s ... ptoms.com/
Even denture cream seems to cause MS symptoms in some.
there is a lot about it if you googe hyperbaric chambers lymes cure or things to that effect.
some get benefit useing them for ms. maybe it's because they have lymes or both.
i think the dr.'s doing ccsvi treatment in egypt recommend after treatment you use inclined bed and hyperbaric chamber. i a little foggy on that but seems i just read that.
of course here in the states it would be self pay in private clinic. they just got one at the hospital in my home town but since it is not approved for ms or lymes i can't try it. treatments aren't cheap if you can be lucky enough to be near a private clinic. i'm not real convinced that a portable in home model would do the job as they are not 100 percent pure oxygen. i was thinking of trying that route but they are pricey too.
onething for sure, lymes, ms, veins and blood flow seems to have a good chance of being connected. and, it should make a person feel better all that healing oxygen.
but heck, this might work for some and would not involve drugs. they can't let that happen.
I have one rash in my upper right hand. At the onset of my disease, I had severe itching in the same hand sometimes to bleed limits. My neuro suggested Lyme Test. The result came negative. The following tests were done:
Burgdorferi IgG + IgM ELFA : Negative
Burgdorferi C6 (peptide) EIA : Negative
Burgdorferi IgG Immunoblot : Negative
Burgdorferi IgM EIA : Negative
Burgdorferi IgG EIA : Negative
Once I asked my neuro whether I am confirmed case of MS. He says I am not sure since you had only one episode in last 02 years. He says that I may even have Lyme Disease which was not detected through above tests. Can someone help me. Should I go for another test of Lyme (Western Blot). Please see that I am not on any DMD and is taking Baclofen and Gabapentin for symptomatic treatment. Thanks
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