What happened to this forum???
So it's settled, say something once, why say it again? (to paraphrase David Byrne)
- LivabirdsHubbie
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- Location: Northampton UK
over and over
that is very true... so it would be good if the skeptics stop going on about the 1 death, which they say was due to liberation where in fact the family has already said it was the blood thinner not the procedure.
But they keep on and on about this 1 case, even grows over time to 2 cases as published by the Swedish study...
I do agree that both positive, negative and indifferent results should be posted
- LivabirdsHubbie
- Family Member
- Posts: 91
- Joined: Thu Jul 08, 2010 2:00 pm
- Location: Northampton UK
It was an existing condition according to the family, the blood thinner sparked it off, yes of course the liberation procedure at this time was why they were on blood thinners, but the same thing would have happened if they were to have a stroke or whatever reason they would be put on the blood thinnersconcerned wrote:So they would have been on blood thinners and that would have killed them without the procedure then? Or is it best to do the procedure without blood thinners?
The family if you have read it, has come out and said as much
With your logic, you can blame everything on being born, because without that this would not have happened
What 'them'? You are talking in the plural, but there was one death. The coroner stated the death was not a result of the procedure. According her boyfriend jerkbutt's post here at thisisms, she was on two blood thinners. I think people who are scared about the death should know that doctors do not normally prescribe more than one blood thinner in conjunction with the procedure.concerned wrote:So they would have been on blood thinners and that would have killed them without the procedure then? Or is it best to do the procedure without blood thinners?
I'll look into this then, thanks. My impression from what jb posted was that it was that the doctor hadn't know about one of the blood thinners (he offered the advice to make sure your doc knows what you're taking)...but I am not sure about that.Malden wrote:Yes they do... for example aspirin with warfarin (Coumadin) or Plavix. Its more then one blood thinner in the same time.Cece wrote:...I think people who are scared about the death should know that doctors do not normally prescribe more than one blood thinner in conjunction with the procedure.
Back to the topic at hand...let's run those folks who derail threads right out of town...but not me, please.



Coumadin and aspirin both work on the clotting factors.
I have taken both at the same time. Actually I have taken all 3 at the same time.
MDs seem to be across the board on what they are prescribing post treatment. Every patient and need is different.
Especially with blood factors.
Rose
I was using 'them' and 'they" as gender neutral terms because, well, it's 2010. Didn't mean to imply that more people died from liberation-related blood thinner use.Cece wrote:What 'them'? You are talking in the plural, but there was one death. The coroner stated the death was not a result of the procedure. According her boyfriend jerkbutt's post here at thisisms, she was on two blood thinners. I think people who are scared about the death should know that doctors do not normally prescribe more than one blood thinner in conjunction with the procedure.concerned wrote:So they would have been on blood thinners and that would have killed them without the procedure then? Or is it best to do the procedure without blood thinners?
Dictionary.com
Long before the use of generic he was condemned as sexist, the pronouns they, their, and them were used in educated speech and in all but the most formal writing to refer to indefinite pronouns and to singular nouns of general personal reference, probably because such nouns are often not felt to be exclusively singular: If anyone calls, tell them I'll be back at six. Everyone began looking for their books at once. Such use is not a recent development, nor is it a mark of ignorance. Shakespeare, Swift, Shelley, Scott, and Dickens, as well as many other English and American writers, have used they and its forms to refer to singular antecedents. Already widespread in the language (though still rejected as ungrammatical by some), this use of they, their, and them is increasing in all but the most conservatively edited American English. This increased use is at least partly impelled by the desire to avoid the sexist implications of he as a pronoun of general reference. See also he1 .
On this particular matter there has been misinformation out there and I do not want anyone here to mislead anyone on this.concerned wrote:I was using 'them' and 'they" as gender neutral terms because, well, it's 2010. Didn't mean to imply that more people died from liberation-related blood thinner use.
Rose2, thanks for the info, I've wondered how these work. I must confess I earlier thought that a blood thinner literally thinned the blood.
- garyak
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This is a forum though, that should continue to welcome healthy debate because that will make this site much more valuable and credible.
Obviously this needs to be done in a civil way.
I feel my level of understanding of ccsvi, testing for it and venoplasty ,especially through Dr. Sclafani's thread , is infinitely greater than what I knew just a few months ago.
Every day I try to get on here for a while and sometimes for hours. I recommend it to all I meet with MS.
Really it's good news that the honeymoon of early work is over and this is getting real criticism. It's like a new theory gets shot at by a firing squad and if it lives then it might be true. Taking some bullets now. Real world.
Debate not dogma.
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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