doppler showed no blockage

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
tiredloulou
Family Member
Posts: 26
Joined: Wed Jul 14, 2010 2:00 pm
Contact:

doppler showed no blockage

Post by tiredloulou » Thu Aug 12, 2010 1:05 pm

but just had a ccsvi ultra and.........he stated hopefully he'd be seeing me after for a follow..........

and good luck......

anyone else have test show 2 diff. results

doppler clean
ccsvi, not

Rokkit
Family Elder
Posts: 669
Joined: Tue May 19, 2009 2:00 pm

Post by Rokkit » Thu Aug 12, 2010 1:23 pm

I'm sorry, but I really don't understand what you're saying. Can you give some more details?

Cece
Family Elder
Posts: 9313
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece » Thu Aug 12, 2010 2:52 pm

There have been plenty of reports of people getting told they don't have ccsvi based on the imaging but then they do once the venogram is done. Sadly it's gone the other way too, where imaging shows ccsvi but the docs can't find it once they go in.

How experienced was your doctor?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

User avatar
tiredloulou
Family Member
Posts: 26
Joined: Wed Jul 14, 2010 2:00 pm
Contact:

neg. results of doppler

Post by tiredloulou » Thu Aug 12, 2010 3:44 pm

1. I had the ccsvi ultra sound Tuesday..........
the tech. doing this was trained in Italy by Zamboni's team( he spoke of)

sounded positive in me looking farther into treatment, when we finished up ultra sound( report will come to my dr. in 1 week)
I have the disc also.........

which I will give to my GP, who sent me.......

2. Along with this test, he also sent me for jugular doppler test
( different location) and this tech. said, my doppler was clear clear

3. I am wondering if, a regular doppler, shows a false reading?

probably too excited I was able to access the ccsvi test......
need to wait, for my doctor to get this report.......

and he'll have to decide on what test he trust?
maybe request a mrv?

any feed back is welcomed.......

Ontario, Canada.,
just started doing my homework on getting this moving forward

Cece
Family Elder
Posts: 9313
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: neg. results of doppler

Post by Cece » Thu Aug 12, 2010 3:48 pm

Of the two, I'd trust the one done by the tech trained in Zamboni's methods.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Post Reply