Just a BAD COPY......

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
BadCopy
Family Elder
Posts: 141
Joined: 8 years ago
Location: 10,000 Lakes

Just a BAD COPY......

Post by BadCopy » 8 years ago

Well I will be headed to NY on Thursday and "under the knife" on Friday. And I couldn't be happier. I will be at the hospital.

Having been diagnosed way back in 1993 and self diag as SP since 2006-7 I don't expect reversal. I guess I just hope that I have the issue and it's correctable.

I will be updating after my procedure but most likely not for at least a few days. I am going to hang out in NY for a few days post op. If anyone has any specific ? about the process/procedure that has not been answered send me a PM or ask on this thread and I will try to answer.

This is just a personal thing, but I am going to see if there is a way to make a small cash donation to either Albany Med Center IR Dept OR CCP (off-site clinic). I am not well off so when I say small I mean small :lol: I think maybe it would help them keep costs down at the off-site clinic or maybe put towards equip/research/training.

Good Luck to all !

User avatar
BooBear
Family Elder
Posts: 339
Joined: 9 years ago
Location: Chicagoland
Contact:

Post by BooBear » 8 years ago

Best of luck to you, Bad Copy!! All will be well- you are in very good hands at Albany.

Make sure to keep us posted!!!!!!
Three veins angioplastied.  One renewed life.  

User avatar
erinc14
Family Elder
Posts: 599
Joined: 8 years ago
Location: Montreal

Post by erinc14 » 8 years ago

all the best :!:

User avatar
TMrox
Family Elder
Posts: 263
Joined: 8 years ago
Contact:

Post by TMrox » 8 years ago

Great. Best of luck and a speedy journey to liberation!!! :D

Rox
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.

User avatar
CCSVIhusband
Family Elder
Posts: 475
Joined: 8 years ago
Location: Pittsburgh, PA USA
Contact:

Post by CCSVIhusband » 8 years ago

Do you know which doctor is doing your procedure?

All the best BadCopy!

I hope you get 1,000,000 Mg's of placebo ... each day for the rest of your life.

User avatar
garyak
Family Elder
Posts: 314
Joined: 8 years ago
Location: grande prairie , alberta,canada
Contact:

Post by garyak » 8 years ago

I wish you the best , I hope to have my procedure in Sept and also have gaurded optimism because I have self diagnosed PPMS and just hope for slowing of progression . Anything else will be like christmas.

User avatar
hannakat
Family Elder
Posts: 128
Joined: 9 years ago
Contact:

Post by hannakat » 8 years ago

Good luck Badcopy! ++++++ vibes being sent!

User avatar
JCB
Family Elder
Posts: 143
Joined: 8 years ago
Contact:

Post by JCB » 8 years ago

Good Luck, I will be heading East from the Land of 10,000 lakes in Sept.

Looking forward to hearing how you progress. I am trying to keep my expectations in check as well.

User avatar
Trish317
Family Elder
Posts: 357
Joined: 10 years ago
Location: Rhode Island

Post by Trish317 » 8 years ago

Best wishes for wonderful results....

Cece
Family Elder
Posts: 9313
Joined: 9 years ago
Contact:

Post by Cece » 8 years ago

Hoping all the best for you!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

User avatar
bluesky63
Family Elder
Posts: 441
Joined: 13 years ago
Contact:

Post by bluesky63 » 8 years ago

All the very best to you, and what a lovely generous impulse! :-)

User avatar
Vivianne766
Family Elder
Posts: 188
Joined: 8 years ago
Location: WNY
Contact:

Post by Vivianne766 » 8 years ago

Yay. Wishing you best results and lots of improvements.
:D

User avatar
BadCopy
Family Elder
Posts: 141
Joined: 8 years ago
Location: 10,000 Lakes

Post by BadCopy » 8 years ago

CCSVIhusband wrote:Do you know which doctor is doing your procedure?

All the best BadCopy!

I hope you get 1,000,000 Mg's of placebo ... each day for the rest of your life.
Not sure. Just know that all the DR contact I have had has been with Siskin. And I am at the hospital. Thats funny, I was thinking that I would be very happy with some of that Placebo I keep hearing about !

Thanks all for the kind words and yes I will update after returning. I know what its like when waiting and wanting to know everything you can. And wanting reassurance that you are doing the right thing, etc.........

User avatar
MS_HOPE
Family Elder
Posts: 133
Joined: 8 years ago
Location: North Carolina, USA
Contact:

Post by MS_HOPE » 8 years ago

Sending you positive, healing thoughts for your Albany Adventure, Bad Copy! Best of luck!
CCSVI:  Making Sense of MS

User avatar
sgriff
Getting to Know You...
Posts: 21
Joined: 8 years ago
Location: Baton Rouge, LA
Contact:

Post by sgriff » 8 years ago

Bad Copy -

It's good that your expectations are realistic - you don't want to be devastated in case you don't see results. But I wanted to share a little about my husband's experience as it is similar to yours. He was diagnosed in 1992 and had symptoms for about 5 years before that.

His liberation was on August 10th. He is seeing some improvement. He is noticing less brain fog, more energy, better color around his ankles AND his legs are stronger! He is also having more ease with emptying his bladder. His gait has not really improved yet, but his legs are definitely stronger. He got in the car the other day and didn't have to pick up his other leg to get it in. That was huge.

So, there's hope for you! It was awesome seeing the "concept" that I've read so much about become reality.

I wish you the best. Do keep your expectations low because I confess, even though I thought I had realistic expectations, I was bummed when we didn't see the WOW results! Shame on me. I guess I was afraid it wasn't going to work for him.

Best of luck to you!

Sandra

Post Reply