Remembering Holly

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Remembering Holly

Post by Needled » Wed Aug 18, 2010 2:05 pm

Time goes by so quickly. It’s hard to believe that tomorrow marks the first anniversary of Holly’s passing. I wanted to say to her family, friends, loved ones and Holly herself if she’s looking down and keeping an eye on us, that she’s not forgotten and never will be. She gave so much to so many and had such a special way about her. I didn't have to meet her in person to know that -- it shined through her words during the time she spent here with us.
Miss you Peekaboo. Peace.

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Post by scorpion » Wed Aug 18, 2010 2:08 pm

Thanks for posting this Needled.

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Post by LR1234 » Wed Aug 18, 2010 2:16 pm

I am still so sad about Holly (Peekaboo)
I still have all her messages to me in my inbox:( I will never erase them.

We all miss you Holly


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Post by colapesce » Wed Aug 18, 2010 2:45 pm

R.I.P. Peekaboo.

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Post by CRHInv » Wed Aug 18, 2010 4:59 pm

I am so glad you posted this. I came to this board after Holly was gone, but I think I have read most of what she wrote. She was a beautiful, caring soul.
Rest in Peace, Holly.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.

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Post by cheerleader » Wed Aug 18, 2010 6:17 pm

Thanks for remembering the date, Cheryl. So hard to believe it's been a year.
Peek...we miss you. We are so sorry that you aren't here with us...and I send my condolences to your family. I wish we could have spared your family this tragic anniversary. I wish a lot of stuff, but we will never, ever forget you.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09

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Post by elyse_peace » Wed Aug 18, 2010 6:41 pm

I came to TiMS after Holly was gone, but I thought the date is aug 14 per jerkbutt's post:

8/14/09-Jugular Venous Engorgemment?

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Post by Chrystal » Wed Aug 18, 2010 7:09 pm

I came late to Tims and didn't have the pleasure of "meeting" Holly. But I am saddened by her loss, all the same. May she rest in peace.

Wishing her family and all who knew Holly peace, strength and comfort.

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Post by CureIous » Wed Aug 18, 2010 9:27 pm

I kept all her messages in my inbox too, and her # in my phone, and am proud to bump my thread started by her. We were gonna chat more soon as she got home from Stanford :..(

Real gem of a lady, sorely missed.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap

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Post by Cece » Wed Aug 18, 2010 9:35 pm

She was a true pioneer. So sad that it turned out the way it did. She could've been any one of us. :(
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

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Post by ErikaSlovakia » Wed Aug 18, 2010 10:12 pm

Rest in Peace, Holly and thank you for everything again!
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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Post by Loobie » Thu Aug 19, 2010 3:16 am

This made me tear up this morning. Holly was so inspirational to me in terms of making my decision. Us early birds at Stanford just had each other for a little bit there until this took off and she was like such a supportive, positive person. I miss her and her killer attitude.

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Post by se1956 » Thu Aug 19, 2010 5:10 am

My highest respect for Holly and all the other pioneers.


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