- Family Member
- Posts: 41
- Joined: Sun Jan 10, 2010 3:00 pm
- Location: Raleigh, NC
My wife is concerned that ballooning (angioplasty) if necessary will not last or work at all.
What are ur thoughts on angioplasty for CCSVI and how often or what would cause the balloon not to work?
In many of our experiences, the numbers are higher than that. I began restenosing after balloon angioplasty after 2 weeks.
I was retreated almost 1 month ago and still feel fantastic. I can't say if it was the technique of a different doctor, that my veins were already somewhat damaged (in a positive way) and therefore are holding longer, or some other reason.
That is why it is so important to try to have this treatment as close to home as possible. It is not a one time deal in most cases, regardless if you have stents or not.
Best of luck to you on the 22nd!
- Family Elder
- Posts: 176
- Joined: Fri Jun 04, 2004 2:00 pm
- Location: Canada - Ontario - South-West
"...how often or what would cause the balloon not to work? "
Plenty. Muscles, tendons, ligaments, nerves, glands, arteries, bones.
This is the problem with this whole CCSVI thing as I see it. While less than perfect blood flow may be a problem for MS as well as a host of other diseases, this whole ballon / stent approach addresses only the symptom, not the cause. Stenosis of a vein MAY cause a problem with blood drainage and flow. However the next question to address BEFORE doing anything is to determine the actual cause of the stenois.
There is a wonderfull image on Dr. Haacke's site (Case 3) that shows stenois of the jugular caused by a bone overgrowth adjacent to the vein. All the balloning and stenting in the world will not correct that problem for very long.
Some people with stents - which for the most part were designrd for use in arteries - complain about pain. The interesting thing about that is that veins have no sensory nerve endings. They cannot 'feel' anything. Any pain felt therefore must be caused by pressure being placed by the stent on tissues outside the vein.
Some are striking a compromise, which is not a bad deal either if you have good insurance, or are rich enough to fly overseas 2-3 times, or cross the border from CA and pay cash in the states, that being go for angio once, maybe twice, if it doesn't stick, go for stents.
Some of us don't have such luxuries and rolled the dice with stents, so far 1 year+ post op, so good. So if you can afford to do the multiple rounds deal, do that, wanna roll the dice, do that too. Otherwise stents are the only alternative, as maligned as they are...
After the first procedure, I felt great for 5 days but then the IJV's re-stenosis and all the symptoms returned. After the second procedure (where the IR opened up the left side bit not the right IJV), the improvement in symptoms has been maintained for a couple of months now.
At one time I was gung-ho for having stents implanted but now I am thinking that aggressive ballooning might be a better choice. However because CCSVI is a vascular disorder each case is different and treatment varies.
I would suggest a second ballooning attempt before using stents; they are basically permanent once implanted.
Got MS?.....Get Liberated!
Sinan's uber-ballooning is exciting, I hope that holds up.
I also think we do not know how the stents fare in the long-term. In angio, the risk of restenosis is from the elastic recoil, as mentioned in a post above, and clotting is not as likely (hence some docs choosing not to put the angio-only patients on blood thinners, when they'll always put stented patients on thinners). But in a stent, the risk of restenosis is from overgrowth of the vein wall or clotting. So it's a trade-off of one type of risk for another type. Once the docs get it all sorted, then we can trust their 'best practices' decision. Until then there is so much for us to figure out on our own.
- Similar Topics
- Last post
Beijing Institute--neurosurgeons treating jugular veins
Last post by NHE « Sat Jan 12, 2019 3:39 amReplies: 2
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by cheerleader » Thu Jan 10, 2019 3:45 pm » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 2 Replies
- 396 Views
Last post by NHE
Sat Jan 12, 2019 3:39 am