to these idiots, we are worth more without treatment.
think of the blow we would hit serono or any of the drug suppliers with if we all went without our meds (20-24l per year per person)......... although everyone says we need to stay on our meds.
i am heading off to delhi, india in 2 and a half weeks and my neuro is awaiting my results.
at this point, all we can do is try to change these people by showing them the results and talking about it one at a time.
i met someone from the mss last week and although she was rather new with the company, i felt like spitting in her nametag as she works for the very same organization that is battling us every step of the way.
made sure to get her card and told her that i am going to india for treatment. she'll be getting a copy of my blog and copies of all my reports pre and post op. i swear i will speak to someone at her office about this.
Yes, it would be nice but the trouble is it's not such a bad comparison. There's lots of articles out there that deal with this, but here is just one.Stacemeh wrote:It would be so nice if we could quit trying to compare medicine to the oil and gas industry.financial reasons (10 billion of them).
There isn't enough scientific evidence to conduct a scientific trial. But the scientific trial would provide scientific evidence.
And WE are allegedly the ones with cognitive issues.
Since my liberation, I am a new person. I have no more fatigue. Brain fog is gone. Nothing hurts anymore. I have not been as active on this board because I have been living my life. Isn't that great?
But don't pay attention to my experience. It's purely anecdotal.
having been on this forum since november I have seen a lot of replications. Simka's 381 patients with 97% is going to be huge. But there are a LOT more. the numbers from jordan kuwait are over 80%...there are numbers coming back from india, u.s. scotland, costa rica, Bulgaria, mexico, and Oz... to say there are no replications is to say 'Im stupid and I live with my head in the sand' .Once again the reason they are calling for a hold on trials is because people much smarter than you or I see problems with Zamboni's theory. No one is calling for an end to CCSVI trials but they are expressing caution in moving forward because so far there has been NO OVERWHELMING EVIDENCE SHOWING THAT CCSVI IS RELATED TO MS. There has been a lot of anecdotol information but no hard science. Doctors and Researchers use scientific facts to make decisions because that is how they have been trained. The problem is not the NMSS, neurologists, etc, it is that no one has been able to replicate Zamboni's original resuts or really even get close to his findings of 100% correalation between MS and CCSVI.
That's why I like it better when they argue about what causes ccsvi. Denying it's existence is so last year.
here are words i've come across in negative articles :L wrote:Yes, it would be nice but the trouble is it's not such a bad comparison. There's lots of articles out there that deal with this, but here is just one.Stacemeh wrote:It would be so nice if we could quit trying to compare medicine to the oil and gas industry.financial reasons (10 billion of them).
high tech faith healing
the last 2 are words general motors used in publications to stop demand for the highly successful electric car. seems the tactics are similar .
http://www.ctv.ca/CTVNews/TopStories/20 ... es-100901/
How is is that this committee only looked at 9 papers on CCSVI? There are currently 63 in the world!!
Now, Surprise, Surprise! Our Canadian Health Minister Leona Aglukkaq is accepting the "prudent" advice of CIHR. She says CCSVI treatment is "invasive" and "too risky" for human trials. Yet, she welcomes contributions of povinces like Saskatchewan toward funding trials.
Here's link to the article in today's Globe and Mail:
Hmmmm, you could find at least 1,000 MS patients within a 2 km radius in Saskatchewan. What would satisfy Ms. Aglukkaq won't satisfy Mr. Savoie. This hot potato throwing is totally disappointing me, my friends and family. Not only do I have MS, my older sister does as well.Ms. Aglukkaq said she welcomed the resources that provinces like Saskatchewan have directed towards the issue.
But Mr. Savoie said any real clinical trial would require a pan-Canadian approach involving at least 1,000 patients. "A single province, or a single site, would simply not be a way to get to the definitive answers that we all want."
Saskatchewan has said it will proceed with trials regardless of the direction taken by the federal government.
Money talks, and mine is yelling at me to not let it go to the MSS, and I hear it talking to my family, my friends, my friends friends and so on.
Oh, obviously no PC's suffer with MS, or know anybody with MS.
What a shame that our health care is in the hands of politicians/dimwits who value their own opinions over people's health and welfare.
The Federal Health Minister of Canada [ - a politician ... NOT a doctor ... according to her ... ] has consulted with her experts in CCSVI . And taking their advice .... has decided not to create a Trial . Yet.
Pardon me for laughing ..... but she may as well have gathered a room full of dentists or veterinarians ...... for the advice given .
Not ONE of her experts can ..... or has the ability ..... to perform CCSVI corrective procedures .
I would suggest Ms. A ..... spend some of the Canadian taxpayers money ..... and travel to Italy or Stanford California or Albany or Poland ...... and SEE and ASK things for herself.
If that's not possible ...... assemble a NEW expert group ..... they are willing to travel ..... Zamboni ... Dake ..... Siskin ..... Mehta .... and ALL the other incredible CCSVI medical experts .
But they might not be as available as the Health Ministers so-called experts ...... as they are busy HELPING those with CCSVI .
And as I expect ...... when the heat get's too hot for Health Minister A ...
the Gov't of Canada ..... will simply shuffle the Cabinet .....
And a new - equal or worse - Health Minister ..... will take over .....
How about an actual doctor this time ?
Say ....... Sandy McDonald ......
To consider dear to me, as my parents, him who taught me this art; to live in common with him and, if necessary, to share my goods with him; To look upon his children as my own brothers, to teach them this art.
I will prescribe regimens for the good of my patients according to my ability and my judgment and never do harm to anyone.
I will not give a lethal drug to anyone if I am asked, nor will I advise such a plan; and similarly I will not give a woman a pessary to cause an abortion.
But I will preserve the purity of my life and my arts.
I will not cut for stone, even for patients in whom the disease is manifest; I will leave this operation to be performed by practitioners, specialists in this art.
In every house where I come I will enter only for the good of my patients, keeping myself far from all intentional ill-doing and all seduction and especially from the pleasures of love with women or with men, be they free or slaves.
All that may come to my knowledge in the exercise of my profession or in daily commerce with men, which ought not to be spread abroad, I will keep secret and will never reveal.
If I keep this oath faithfully, may I enjoy my life and practice my art, respected by all men and in all times; but if I swerve from it or violate it, may the reverse be my lot.
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While you are correct in stating that there is indeed no overwhelming evidence, let me take this statement a step further.scorpion wrote:Once again the reason they are calling for a hold on trials is because people much smarter than you or I see problems with Zamboni's theory. No one is calling for an end to CCSVI trials but they are expressing caution in moving forward because so far there has been NO OVERWHELMING EVIDENCE SHOWING THAT CCSVI IS RELATED TO MS.
For decades, researchers have not been able to provide overwhelming evidence that MS is an autoimmune disease. We have read in the past few years that some MS researchers (ie: Dr. P. Behan) go as far to say that the autoimmune theory is wrong and we are looking in the wrong area to solve the mystery.
Yet all of the current approved MS medications are powerful immune-suppressant drugs! Billions of $ have been spent on these drugs which don't do all that much in the long run for MS patients. Yet, here they are being sold at record levels to fight MS with no overwhelming evidence to show that MS is an auto-immune disease!
But these medications have extremely powerful financial backing and clout behind them. CCSVI does not and it is now up against the established MS world of medicine. The battle is starting and I fear it will be ugly.
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