JCB's Liberation Journey PPMS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Cece
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Post by Cece » 8 years ago

Congrats, JCB! :) :)

Maybe tomorrow will be the second time in two years.

newlywed4ever
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Post by newlywed4ever » 8 years ago

Way cool, JCB! - Sounds like a Halloween dream :o

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JCB
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Post by JCB » 8 years ago

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David1949
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Post by David1949 » 8 years ago

What does your neurologist do for you? Of course if you're taking the CRAB drugs you need the neuro for the Rx. But if you aren't taking them then what does the neuro do for you?

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JCB
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Post by JCB » 8 years ago

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JCB
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Post by JCB » 8 years ago

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NotFound
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Post by NotFound » 8 years ago

Good luck JCB!

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blossom
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Post by blossom » 8 years ago

the best to you jcb. sounds like your dr. is near you so that is a very good thing.

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Trish317
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Post by Trish317 » 8 years ago

Sending you good thoughts and prayers. I think my darling man has also restenosed. He's having an ultrasound next month. I hope they know what they're doing and what they're looking for.

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JCB
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Post by JCB » 8 years ago

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Cece
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Post by Cece » 8 years ago

Coming at the stent from above - that's what Dr. Sclafani was talking about in his rendezvous procedure post. I hope it is very successful.

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blossom
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Post by blossom » 8 years ago

jcb so glad you are seeing improvements even slight ones are great in the whole scheme of things.

but sorry to hear of the clotting. it sounds like this dr. taking care of it is on the ball.

i am also ppms treated at albany no stents. actually got worse. would you mind if you know telling why the agyous was not treated in albany. also what drug plan you were put on. i'm glad to hear the dr.'s are now paying more attention to this very important part of liberation.

i have a feeling the agyous vein has more to do with us ppms. hopefully soon they will be able to better treat vein problems in the spine.

please keep us updated and know thoughts and prayers are being sent your way for safe and healing improvements.

Cece
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Post by Cece » 8 years ago

Good question, blossom, I'd focused on the clot and missed that. How did the local doc find the azygous issue? Did he use any special technique, had he identified it on MRV before going in, did he identify it during the procedure?

A year ago I couldn't find anywhere to go to get treated. Now there are serious doctors here in MN and close-by in IL. Very happy.

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JCB
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Post by JCB » 8 years ago

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leetz
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Post by leetz » 8 years ago

Wonderful you are for being a pioneer!! God will continue to bless....all of us...keep up the good fight!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

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