JCB's Liberation Journey PPMS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Cece
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Post by Cece » 8 years ago

Wow, I am glad to hear your doctor was able to get the clot out, especially with it being that old. Very impressed.

Thanks for the updates. It is especially good to hear how people are able to deal with the sorts of post-procedure complications that can arise. Especially since yours is a success, at least when it comes to getting rid of this clot.

It's interesting about the collateral. Why would the blood choose the collateral if the jugular is open?

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JCB
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Post by JCB » 8 years ago

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NotFound
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Post by NotFound » 8 years ago

Glad to hear it was taken care of!
JCB wrote:Both Siskin and my current Dr. believe that the collateral formed quite some time ago. It is very large, as large as the jucular itself.
Wow! Jugulars are rather big!

I was always wondering... If the collaterals form so efficiently and take over sort-of-speak, why would we need to "fix" the stenosed veins then? Not a question to anyone specifically, just my musings.

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Post by Lyon » 8 years ago

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JCB
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Post by JCB » 8 years ago

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Lyon
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Post by Lyon » 8 years ago

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Cece
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Post by Cece » 8 years ago

Apologies, JCB, wishing you the best.

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jimmylegs
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Post by jimmylegs » 8 years ago

i hope i've read back far enough to see where this has been going, but in the last couple pages anyway, i'm not getting a sense of stone throwing here personally.. just general musings. jcb i hope you continue to post your progress, keeping in mind that what we have here is an open forum where discussion of different perspectives or musings on the same topic are what TIMS is all about... as long as we conform to the rules. if you would prefer to post progress without discussion that might be something achievable in the journal section of the web site - let me know if you would like me to investigate.
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take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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JCB
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Post by JCB » 8 years ago

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aliyalex
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Post by aliyalex » 8 years ago

JCB, you can post in the tracking sticky, too, if you don't want interaction. we appreciate hearing everybody's experience. Afterall, we are all in this together.

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