My concern is that it seems some vascular doctors are stenting at the first try, without considering ballooning first. Zamboni's recommendation is to balloon first, if restenosed then balloon again.
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I speak only for myself, but I was out of wait. I now have a stent, because my angioplasty failed. It may be OK when you're 30 and no compelling symptoms, but at 60 and a mess, I'll take a stent anytime.
We all take our chances, and, there's nowhere in Canada to be treated, so thank you Dr.Simka, he's only working with what he has available. and I believe he doesn't take stents lightly either and has studied types and sizes etc. at lemgth.
I guess now, I'll just pray for no thrombosis. I wonder what the rate of thrombosis is in arterial stenting?? Not that it matters I guess. I was thrilled for the CCSVI news in my lifetime, and the more its studied, of course the better it's going to get. This is whats available right now, and I can only pray my stented vein stays open. I'm so happy...I can't live in fear.
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You make a statement about stents being used 'so often'. I think you are mis-understanding the real situation from a few comments on this chatroom. My quick and dirty assessment is that less than 20 percent of pwMS who get therapy receive a stent. The answer is probably less than 10 percent because some Drs do not use stents at all and they are doing lots of balloon venoplasty.
I choose a surgeon who does not use stents but cleared restrictions in 4 veins. I expect that I will need more checks and maybe ballooning as research is progressing at a rapid pace.
For some people ballooning does not work on your all or some of their veins and they make a personal choice. The risks of stents are clear and well documented on the chatroom. However MS progression is a risk for most people with MS.
I don't recommend anything, I'm not a doctor, but you'll see plenty of "get angioplasty" posts all over the place. Says who? Who's being treated online? No one. How anyone on the internet can recommend things with authority to a specific individual/situation is beyond me. I don't care what Dr. is quoted, unless that particular Dr. is treating you specifically it's just more internet fluff. Pick and choose, all of it.
At that point, it's purely politics, plain and simple. Bias gravitates one to whatever supports them. I support whatever one decides for their own situation without attempting to steer in one particular direction or the other, based on telling half the story. The person who is sick gets the final say so on what direction they choose, nobody has stents forced into their veins, neither is anyone held hostage to make 3 trips to Bulgaria for a re-treat angioplasty. It's just a personal choice.
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I have said this from the beginning. There is no evidence that stents are ncecessary. Dr Zamboni, who has so far written the only study on this subject, recommended against stentsozarkcanoer wrote:I have 2 stents. In my case there was no possibility that my right and left IJVs would remain open if the doctor only ballooned my veins, because of the location of the stenosis. I was the one who chose stents. And I am glad that I did. I am 64. I needed a better quality of life now. I was treated on August 17. So I chose stents. Today I feel pretty good (not perfect), and a whole lot better than last summer when I was suffering terribly from chronic fatigue and pain and depression.
Four groups come to mind that have treated more than 200 patients each. Three use stents, one of them treats about half the patients with stents
one of these groups does not use stents routinely and has never placed a stent. Yet their restenosis rate at three months is2%. TWO PERCENT.
they are doing something right and i look forward to their publications
I will not stent
The answer to the question of why stents is that angio doesnt work alone all the time.
My flow readings from the day before and the day after were only a little different. The angio didn't change much.