final CCSVI blog post

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
Loobie
Family Elder
Posts: 2197
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA
Contact:

final CCSVI blog post

Post by Loobie » Thu Oct 28, 2010 7:40 am

Well it's been almost a year and a half and I've summarized my thoughts on what having this done has been like in my blog. Check it out!

User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

ccsvi

Post by blossom » Thu Oct 28, 2010 9:08 am

i have always followed your post with much interest. i too am ppms but, much older and further progressed. i too was treated but not the success you have had . i am glad that you are experiencing the good you are. i'm sure you will keep up on things as they develope. seems ppms may be connected to spinal veins and they can not do much about that "yet." with your age and at least the ccsvi procedure holding things at bay i feel you have a good shot at getting better. have you checked out uprightdr.? very interesting. a lot of ppms have trauma's before onset ms. this definitely was my case. but we each have to try to find a path that works for us. no stone unturned. as you are retired hopefully your free time allows you to heal, search and find your path. i hope you pop in from time to time and let us know. the very best to you.

User avatar
MrSuccess
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 2:00 pm

Post by MrSuccess » Thu Oct 28, 2010 10:59 am

loobie - thanks for the update . keep in mind ... that TIMS is now much bigger in scope and content ..... compared to the early day's when you , MarieRhodes .... Cheerleader .... and all the other CCSVI pioneers first started this incredible CCSVI journey .....

new TIMS readers will probably not know your story ... and the important role you played in getting this off the ground .

I have read your blog . As always ...... a good read.

As your corner man ..... I'm sponging you off ..... putting more grease on your forehead ...... and sending you back into the ring .....

you're doing better than you think ............. :!:





Mr. Success

User avatar
KikiT
Family Member
Posts: 56
Joined: Tue Oct 13, 2009 2:00 pm
Contact:

Post by KikiT » Thu Oct 28, 2010 11:28 am

Good Luck Loobie and thanks for all your honest input and analogies.
Have followed you from beginning, glad you're OK .Good Luck to you and my wish for your wife is that you get a new hobby.........soon!(lol)

Kiki

User avatar
cheerleader
Family Elder
Posts: 5359
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California
Been thanked: 1 time

Post by cheerleader » Thu Oct 28, 2010 11:36 am

thanks for sharing, Lew---I admire your honesty and spirit and writing. And it goes without saying that we'd all hoped there would be more recovery for those with progressive disease. I still hold out hope there's more to be learned from this discovery....especially for you.
xo,
J
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

ErikaSlovakia
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe
Contact:

Post by ErikaSlovakia » Thu Oct 28, 2010 11:41 am

Hi Lew!
Thank you!
I also hope there's more to be learned from this discovery.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

User avatar
Loobie
Family Elder
Posts: 2197
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA
Contact:

Post by Loobie » Thu Oct 28, 2010 11:46 am

Thanks for all the support guys. It means a lot!

User avatar
prairiegirl
Family Elder
Posts: 228
Joined: Fri Feb 05, 2010 3:00 pm

Post by prairiegirl » Thu Oct 28, 2010 12:29 pm

I've really enjoyed reading your blog and your posts here, Lew. Thanks again for being one of the "guineas of the highest order" (your words :D ), and for all that you've done to help others learn about this journey. Keep on postin' and we'll keep on readin'. Very best to you, enjoy your retirement and wish you lots of good times ahead.

Post Reply
  • Similar Topics
    Replies
    Views
    Last post