Guess Who Said This?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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bestadmom
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Guess Who Said This?

Post by bestadmom » 8 years ago

So if I could sum up, general recommendations are very hard to make at
this point without the evidence. There are cases that, discussed individually with an intelligent individual who has read [the literature] and is very anxious and knows the pros and cons of ...., it might be reasonable to consider treatment in such individuals. But it is case by case until we have the evidence that treating ...makes a difference in the long run.

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Post by Cece » 8 years ago

I couldn't guess, so I googled...surprising though!

concerned

Post by concerned » 8 years ago

Paolo Zamboni of course!!!

D'oh


Edit: added "D'oh"
Last edited by concerned 8 years ago, edited 1 time in total.

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cah
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Post by cah » 8 years ago

Very, very close, concerned. :lol: ;)
"There is only one good, knowledge, and one evil, ignorance." Socrates

concerned

Post by concerned » 8 years ago

Wooops!

It's Dr. Freedman!!!

It was just very close to this:

My recommendation at this particular moment, from a scientific point of view –which is the only point of view interesting for me – is that we do not have enough data to recommend surgery in MS. But individuals, both physicians and patients, are completely free to do what they want. I cannot control this. I do not want to control this. But certainly, the message is that we are not ready in this moment to recommend surgery.

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bestadmom
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Post by bestadmom » 8 years ago

Yup, Dr. Freedman. He was talking about drug therapy in the radiological isolated syndrome.

concerned

Post by concerned » 8 years ago

Seems like a reasonable point of view, what does it have to do with CCSVI?

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bestadmom
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Post by bestadmom » 8 years ago

I think it is very reasonable point of view and was sure it was Zamboni who said it. If only Dr. Freedman would apply his logic towards CCSVI. He looks to be inconsistent.

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Post by CCSVIhusband » 8 years ago

Great points bestadmom ...

similar to whoa, whoa, whoa. Slow down on this CCSVI thing ... it's this, it's that, it's everything but the devil ...

I actually guessed Dr. Freedman said this, because I don't think the headline would have been as blatant if it was just a Zamboni or Sclafani quote.

I think the title implied it wasn't them ...

Have a safe and happy Thanksgiving everyone ...

A woman who sat in the office next to me is in the process of being diagnosed right now with MS.

She's a lady - in her 50s ... and I knew something was wrong with her, and I had my suspicions as to if it was MS or not (the left side of her face seemed to be slowly over the past few months "freezing up" you could see the one side of her mouth not work as well - and she has an uncontrollable blink in her one eye).

But the doctors aren't sure ... a stroke is sudden, this built over time (right?).

I know she is worried right now, how could she not be. Keep her in your prayers.

(it would be interesting if she went and got tested and liberated - knowing NOTHING about CCSVI and MS - then how could it be placebo? *I know it's not placebo ... but that'd be an interesting study).

Anyway, keep her in your prayers ... and have a safe holiday!

concerned

Post by concerned » 8 years ago

bestadmom wrote:Yup, Dr. Freedman. He was talking about drug therapy in the radiological isolated syndrome.
Just to clarify, he was talking about using tested drug therapies on a patient who presents with lesions, but no symptoms, right?

That's pretty different than using untested interventional radiological treatments on patients who present with MS.

At least it seems that way to me.

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Post by Mathd » 8 years ago

tested drug terapies but with side effects worst than side effects of CCSVI Treatment...

And tested drugs that have been in a studie that prove they're not working in long term, or not even slow progression...

and not working for primary or secondary progressive forms,

so it's safe to use drugs but not angioplasty?

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Post by Cece » 8 years ago

“the things they used to do, like pour ointments on themselves and wear bracelets, didn't really hurt them.”

Would listening to Dr. Freedman be among the things we used to do?

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Post by welshman » 8 years ago

Quote of the day:
Would listening to Dr Freedman be among things we used to do?
goes to Cece :wink:

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Post by sou » 8 years ago

Fortunately, an occluded neck vein does not hurt. Can you imagine if the doctor's refused treating tooth cavity or broken limbs to MS patients? Ouch!!!!!

Have there been studies, even pilot open label ones, about whether fixing broken limbs is dangerous in MS patients? Hmmm... Last time I went to the dentist's she made a filling, despite my MS.

However, fixing an occluded vein to us is denied. This is malpractice... Why is it so difficult for some people to realize that MS and CCSVI are different syndromes that just happen to coexist? Tooth cavities coexist, too. why do we have them fixed freely?

I am now concerned myself. I am starting a campaign against tooth fillings NOW.

sou(r)

--

Artificial Teeth Co.
35 Sometown Blvd.
Somewhere 12345
U.S.A.

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Post by Cece » 8 years ago

welshman wrote:Quote of the day:
Would listening to Dr Freedman be among things we used to do?
goes to Cece :wink:
thanks welshman :D

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