this point without the evidence. There are cases that, discussed individually with an intelligent individual who has read [the literature] and is very anxious and knows the pros and cons of ...., it might be reasonable to consider treatment in such individuals. But it is case by case until we have the evidence that treating ...makes a difference in the long run.
It's Dr. Freedman!!!
It was just very close to this:
My recommendation at this particular moment, from a scientific point of view –which is the only point of view interesting for me – is that we do not have enough data to recommend surgery in MS. But individuals, both physicians and patients, are completely free to do what they want. I cannot control this. I do not want to control this. But certainly, the message is that we are not ready in this moment to recommend surgery.
similar to whoa, whoa, whoa. Slow down on this CCSVI thing ... it's this, it's that, it's everything but the devil ...
I actually guessed Dr. Freedman said this, because I don't think the headline would have been as blatant if it was just a Zamboni or Sclafani quote.
I think the title implied it wasn't them ...
Have a safe and happy Thanksgiving everyone ...
A woman who sat in the office next to me is in the process of being diagnosed right now with MS.
She's a lady - in her 50s ... and I knew something was wrong with her, and I had my suspicions as to if it was MS or not (the left side of her face seemed to be slowly over the past few months "freezing up" you could see the one side of her mouth not work as well - and she has an uncontrollable blink in her one eye).
But the doctors aren't sure ... a stroke is sudden, this built over time (right?).
I know she is worried right now, how could she not be. Keep her in your prayers.
(it would be interesting if she went and got tested and liberated - knowing NOTHING about CCSVI and MS - then how could it be placebo? *I know it's not placebo ... but that'd be an interesting study).
Anyway, keep her in your prayers ... and have a safe holiday!
Just to clarify, he was talking about using tested drug therapies on a patient who presents with lesions, but no symptoms, right?bestadmom wrote:Yup, Dr. Freedman. He was talking about drug therapy in the radiological isolated syndrome.
That's pretty different than using untested interventional radiological treatments on patients who present with MS.
At least it seems that way to me.
And tested drugs that have been in a studie that prove they're not working in long term, or not even slow progression...
and not working for primary or secondary progressive forms,
so it's safe to use drugs but not angioplasty?
Have there been studies, even pilot open label ones, about whether fixing broken limbs is dangerous in MS patients? Hmmm... Last time I went to the dentist's she made a filling, despite my MS.
However, fixing an occluded vein to us is denied. This is malpractice... Why is it so difficult for some people to realize that MS and CCSVI are different syndromes that just happen to coexist? Tooth cavities coexist, too. why do we have them fixed freely?
I am now concerned myself. I am starting a campaign against tooth fillings NOW.
Artificial Teeth Co.
35 Sometown Blvd.