DrSclafani ASKS a question

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
Hooch
Family Member
Posts: 57
Joined: 9 years ago

Living with MS

Post by Hooch » 8 years ago

For me the worst thing has been having my children grow up with a mother who was always tired and often grumpy because of this. They did not want to bring friends home because their mother was such an embarrassment.
I regret all the fun things I could have done with them and the active sporting activities that I could have done with my husband.
These years can never be returned but I thank everyone involved every day for treatment for my CCSVI that has restored a somewhat normal life to me.

MSandI
Family Member
Posts: 83
Joined: 5 years ago

Re: DrSclafani ASKS a question

Post by MSandI » 5 years ago

Hi
I know this is way over the time frame, but how I describe it is... white noise that is always playing in the background.
Ann

User avatar
drsclafani
Family Elder
Posts: 3180
Joined: 8 years ago
Location: Brooklyn, New York
Contact:

Re: DrSclafani ASKS a question

Post by drsclafani » 5 years ago

MSandI wrote:Hi
I know this is way over the time frame, but how I describe it is... white noise that is always playing in the background.
Ann
Ann
thanks for bringing this forward.

I remember when I started this, i was genuinely struggling to put words behind the disease and all the patient responses have helped me so much in understanding this disease.

Empathy is really important in healing and without such information as was given to me through this thread, i would not have been able to share my patients' fears, concerns, worries and pain.

so often, by sharing some of these responses, i was able to connect to a patient in a meaningful way.

This thread went so far beyond ccsvi....it enabled me to be the kind of doctor my father was.

Thank you all and if you want to share, now is a good time to write and vent your issues

DrS
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com

MSandI
Family Member
Posts: 83
Joined: 5 years ago

Re: DrSclafani ASKS a question

Post by MSandI » 5 years ago

Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann

Cece
Family Elder
Posts: 9313
Joined: 9 years ago
Contact:

Re: DrSclafani ASKS a question

Post by Cece » 5 years ago

MSandI wrote:Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann
http://www.thisisms.com/forum/chronic-c ... ml#p217893
Ann, I linked your question over in his "DrSclafani answers questions" thread in case he misses it here and also so more people will see it.
The doctor in Albany, NY, is Dr. Siskin, who was a student of Dr. Sclafani's, who is in Brooklyn, NY.

Post Reply
  • Similar Topics
    Replies
    Views
    Last post