Cece's turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Post by David1949 » Thu Jan 27, 2011 7:07 pm

I wish you the very best! I'll pray for you. May your treatment be 100% successful on the first try.

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Post by HappyPoet » Thu Jan 27, 2011 7:11 pm

Best wishes, Cece

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Post by AlmostClever » Thu Jan 27, 2011 7:52 pm


Will you be the one performing the procedure or Dr. S?

Try and snag an extra catheter setup for your in-home follow-up! :)

GOOD LUCK!!!!!!!!!!

If you can't explain it simply, you don't understand it well enough. - Al Einstein

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Post by CaptBoo » Thu Jan 27, 2011 7:55 pm

Wishing you a fair wind in your sails.

<div>There be no dragons   ...Reese Palley</div>

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Post by orion98665 » Thu Jan 27, 2011 7:58 pm

"Wishing you the best and good luck!!!!!"

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Post by Kleiner » Thu Jan 27, 2011 8:02 pm

All the best Cece! You're in great hands!

Can't wait to hear all about your adventure.

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Post by Donnchadh » Thu Jan 27, 2011 8:11 pm

May good health and speedy recovery be with you!!!!

(But please, don't try to post while being treated by the good Doctor :wink: )

It's your turn now....you earned it.

Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

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Post by HopingHusband » Thu Jan 27, 2011 11:21 pm

Go for it !!!!

You have contributed so much to this board !!

All the very best to you !!

Rest first !!....and then let us know how it went !!!

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Post by pairOdime » Fri Jan 28, 2011 1:59 am

What a wait it has been...praying for the best possible outcome CeCe.
It's a paradigm shift

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Post by Flashover81 » Fri Jan 28, 2011 4:55 am

Wishing you the very best....

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Post by Cece » Fri Jan 28, 2011 6:22 am

Countdown: 15 days away

So much support. Thank you. :D

We are part of something big here, with CCSVI, and I am honored to be sharing the journey with everyone here.

I've looked up my drug plan on its extremely slow-loading website. Dr. Sclafani's anticoagulant of choice is Arixtra, 5 mg, but it is not on my plan. Lovenox was covered, so I resigned myself to the Lovenox. Then I checked if a different dosage of Arixtra might be available. Jackpot! Arixtra 2.5 mg is on my plan. That means two shots a day instead of one, but I'm a pro from my Copaxone days, no problems there.

I am waiting for the all-clear, yes-this-is-going-through from Holly before I would be so bold as to get my airline tickets.

I sent an email for the Hubbard's registry packet in case Dr. Sclafani will agree to filling out the form needed for Dr. Hubbard's patient-centric registry. (www.hubbardfoundation.org) And I took the water calculator test that Cheer has posted about. (http://nutrition.about.com/library/blwa ... ulator.htm; I need 2.4 liters or my jugulars will restenose out of thirst alone.) My husband requested the days off of work. My daughter talked about the Statue of Liberty and all that she will be seeing in New York.

One day closer.

Yes, it will be a long two weeks. :D

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Post by jozee » Fri Jan 28, 2011 7:08 am


So happy for you!!!


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Re: Cece's turn

Post by BadCopy » Fri Jan 28, 2011 7:10 am

Cece wrote:Countdown: 16 days away


Most of my insurance issues have been worked out. Still waiting on the preauth now and a few details but it looks like it's a go.

I called my GP this afternoon to get an appointment to get an Arixtra prescription and a blood test per American Access Care's instructions.

I am nervous but very happy!
Very nice to hear!!!!

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Post by hope410 » Fri Jan 28, 2011 7:30 am

Can't wait for the in-depth reporting (afterwards, of course!) Will we get a YouTube video of the procedure itself? :lol: Is Dr. Sclafani medicating you to keep you quiet so he can concentrate? LOL :wink:

What a quiet board it will be around here during your procedure with both you and Dr. Sclafani absent! It will feel like a playground without the monitors supervising! :D

I wish you the greatest result possible!

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Post by belsadie » Fri Jan 28, 2011 8:27 am

SOOOOOOOO happy for you . waiting myself for a "Sclafani date".

Be sure to keep all of us up to date with your recovery!

Good Luck and God's Speed!!!!!!!!!!!!!!!!!!!!!!!!!!!

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