He was also very interested in CCSVI and took copious notes about the details of my procedure. He was very positive and did not even seem surprised at my improvement. Previously I would have said my neuro was open minded I would now say he has a clear and positive interest in CCSVI.
All in all it was a very satisfying experience.
I hope you dont mind a few questions:
Where did you go for treatment?
How long have you had MS, and what were your symptoms before the liberation?
Did the symptoms improve quickly after treatment, or slowly over the following months?
Finally can I ask whereabouts in the UK your neuro is? I think I might move there
I'm in hertfordshire
I had the balloon treatment in Edinburgh last month - no major changes yet but it's still early days and my symptoms are relatively mild.
I've got my first neuro appointment for a year on Tuesday. Last time I saw him he was predictably dismissive of Zamboni - I wonder if he has refined his opinion in the last year.
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This was your Neurologist's assessment....he said that you now have no symptoms of MS! Fantastic news and excellent news as well on your Neurologist's interest in the benefits of CCSVI Tx.AMcG wrote:He said I now have no symptoms of MS! I have read other people announcing the same thing on TIMS and I am just a bit proud to be able to say the same thing.
Wonderful, thanks for sharing.
I need to join this post...
I had my liberation done in September last year and I'm also without MS syphtoms since. After the liberation I have had two separate periods (lasting about two days) that I had my "MS leg" back but I had flue so it might be the reason why. So now I have lived my life without MS symphtoms almost 5 months and I can assure you that it is great!!:)
I didn't wish almost nothing for the procedure but I got this much and it is amazing. Only after the procedure I realized how much MS symphtoms I had even though my MS is pretty mild EDSS was only 1,5. I had this brainfog and many other things that I left to Poland which I didn't even knew that I had. So I have pretty good placebo going on!
My neuro sign me off bacause I'm too good condition and he can't offer me anything but CRAB's and I don't want those...
This was what was done to me:
"The venography was performed, a slight narrowing was seen in the right jugular, with impeded outflow, in the left jugular vein no difficulties in the outflow.
On the right side one inflation with the baloon (12x40 – 7 atm/4 minut) was performed, residually <10-20%, with the corrected outflow.
The azygos vein – narrowed to 80% in the middle part. Stent implantation SMART 8x40, with optimal result without residual narrowing and correct outflow. "
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