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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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ykonstan
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Post by ykonstan » 7 years ago

i had my procedure done on december 28 last year. i don't know if someone has anything like i have. My condition may change several times a day: from very bad to almost normal and some day i can even lift my legs to walk (using walker as usual - because of my balance problem) but easier and my legs feel almost normal.
Sometimes i feel ok whole day, next day i feel so week and bad - i feel pain in my legs and can't bend it.
I'm very confused - i don't understand what is happening with my body.
:?:
hope for the best, be ready for worst

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esta
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Post by esta » 7 years ago

i think you need to realize when you do something physical, your body is reacting with pain and stiffness. if you are slowly moving forward, 2 steps, then 1 back, or maybe 2 back some days, but still forward, however slow...its the time to give in with rest and peace of mind that this is your process and give yourself the time its going to take to heal to whatever level you attain.
all in all, it sounds like you just need to accept your process is slow but its still forward...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia

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lucky125
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Post by lucky125 » 7 years ago

You sound like so many of us. I hope it helps to know that you are in good company! You sound a little more impaired than I was before my treatment(s).
Please check out my blog to see all of my ups and downs: www.myliberationadventure.blogspot.com

Hang in there and try to do some rehab if you are able!
Nicole
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com

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Rosegirl
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Valves

Post by Rosegirl » 7 years ago

ykonstan

I've had the same issue for years. My symptoms can change every 10 minutes or less. This clearly isn't the description that applies to "relapsing'remitting" MS.

But it sure goes a long way to point to a problem with one or more valves. For the last six years, usually, I can barely walk because of the stiffness and balance problems I have.

Except for the 30 second to 4 minute intervals when I can walk perfectly -- no stiffness or balance issues at all!

When you were treated, did the doc treat any valves? If not, try again. That's what happened to me. I was undertreated. I should have been able to waltz out the door, but the IR refused my request to treat any valve problems he found. What a waste of time, money and life.

This time, I'll have the luxury of choosing someone who has stayed current on the latest thinking.

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