Below is a link that lists all 39 of them.
So far, I have only read about one of them denying the procedure and that is Empire Blue Cross Blue Shield which is "serving residents and businesses in the 28 eastern and southeastern counties of New York State".
As people confirm other BCBS companies that are also denying the procedure, or any other insurance company, could you please post the company name here so we can keep a track record.
This matters to ALL of us even if we don't all happen to have the insurance coverage that is being denied. Eventually we should start thinking about getting together and filing a class action lawsuit.
I had the us and consult with him in March and all that was covered but I guess the trouble didn't start until the following month with them pulling out.
http://www.empireblue.com/medicalpolici ... 136297.htm
But that's it as far as I can tell. Hopefully Dr Sclafani or someone can add some clarity as to where the other 38 BCBS companies stand on this.
Either way, the likelihood of other insurance companies following in Empire's footsteps are good and I think we need to start thinking about finding an attorney or law firm that would like to take on a class action lawsuit on our behalf. As of last count there are 8 YES votes and 1 NO vote on the poll question of whether you would be interested in participating in a class action lawsuit against any and all insurance companies denying treatment of CCSVI. Please vote.
http://www.bluecrossca.org/provider/noa ... 154296.pdfSURG.00122 -- Venous Angioplasty with or without Stent Placement for the Treatment of Multiple Sclerosis
This is a new medical policy which considers venous angioplasty (with or without stent placement) investigational and not medically necessary for the treatment of multiple sclerosis.
It's a network update for the central region by Anthem. April 2011.
Medical policy update
The following Anthem Blue Cross and Blue Shield (Anthem) medical policies were reviewed on February 17, 2011 for Indiana, Kentucky, Missouri, Ohio and Wisconsin. These policies will be implemented on July 3, 2011.
1) in New York - Empire Blue Cross and Blue Shield
2) in Indiana - Anthem Blue Cross and Blue Shield
3) in Kentucky - Anthem Blue Cross and Blue Shield
4) in Missouri - Anthem Blue Cross and Blue Shield
5) in Ohio - Anthem Blue Cross and Blue Shield
6) in Wisconsin - Anthem Blue Cross and Blue Shield
Get your slings ready Davids.
http://www.anthem.com/ca/medicalpolicie ... 136297.htm
The other problem is that any BCBS patient from elsewhere in the country that wants to be treated in NY (by Dr. Siskin, Dr. Sclafani, Dr. Sperling, etc.), their insurance even if it's BCBS of whatever state has to go through Blue Cross Blue Shield Empire to get treated in NY. So we have people right now who are eligible for treatment elsewhere but not in NY.
When I was about to leave home for an 11 hour drive to San Diego for treatment, Jared from the Dr.'s office called and said Anthem had canceled their pre-approval and were trying to make the Dr. pay them back for the procedures they had already reimbursded!!!
It would be nice to be able to boycott Anthem, but for those of us with pre-existing conditions (all of us) we are kinda stuck.
I checked BCBS of MN, it looks good, no policy on CCSVI, here is where upcoming policies will be listed if BCBS of MN develops such a policy:
http://notes.bluecrossmn.com/web/medpol ... g?OpenView
I am still going down Friday for a Zamboni protocol ultra-sound. Finally. My first post-procedure look-see at my jugulars to see what we shall see. Out of my own pocket, unfortuantely. If it looks bad, I will appeal post-hoc to say it was indeed necessary since there is a problem. Don't know if that will work.Cece wrote:fogdweller, what you have gone through. Hope you're handling it ok. I can't imagine the frustration.
As far as frustration, I really can't complain. My CCSVI journey has been difficult, and so far has not resulted in any improvement, if anything some slight acceleration in progression. However, my MS has been mercifully slow over my life. It is over 35 years since diagnosis, and I can still walk 2 or 3 blocks, am not in a chair and only need to use a cane occationally. Neuropathic pain in the feet and legs is beginning to be a problem, as is memory, especially names, but overall I can't really complain.