Please post when the procedure was done that caused your vein to ultimately be lost. Not when you found out it was lost.
A vein can become fully occluded, after which it is no longer treatable.
Do you think some of it could be a feeling of reflux or the start of TN?
When I try to lift my left foot (drop foot) and am concentrating on making the toes lift I can feel something in my forehead very electric like. This feels very different and isn't a pain.
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I had it before my procedure and I still have it. My stent and vein are OK.newlywed4ever wrote:I'm hoping there's still 7 others watching this thread. I'm a bit off topic here but does anyone else who now has an occluded vein have strange sensations in their head/brain? I ask because today there were a number of times that for a few seconds, I would have a throb or weird pain. Hard to explain...maybe like a bad headache that only lasts 5-10 seconds. It doesn't seem like any particular head movement precipitates this feeling....
Unless I have a problem somewhere else. Who knows...
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Before I went to secondary, and was relapse free for 8 years after my diagnosis, I did have a couple of weird sensations in my head that the doctors couldn't diagnose. Both times it felt like the pulling pain from an infection under the skin. The first time it "swam" around the back of my head and left ear. A second time it was on the top of my head in between my right eye and ear.
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