Credit to newlywed4ever for posting this earlier today, in Dr. Sclafani's thread. Really interesting. A CCSVI patient with occluded subclavian and jugular veins had them successfully recanalized using radio frequency.
I can't remember, but we've discussed this before: would this also work on patients who have scarring occlusions? Or would it be best for patients with clotting occlusions?
Dr. Sclafani mentioned some possible complications, including damage to the carotid artery due to its nearness to the jugulars, which could lead to stroke, arteriovenous fistula or bleeding. Has anyone discussed this technique with Dr. McGuckin, to hear what Dr. McGuckin has said about possible risks?
It's also of note that not only did Dr. McGuckin get the vein open, but three months later the vein was presumably still open (the abstract says that MS symptoms had resolved by three months).
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I know the procedure holds the most promise for "RR" people, but some are not hoping for a complete reversal, so much as to stay alive. I believe it can make that happen.
Not a doctor.
Didn't Dr. Ponec present at the AAC patient day, from his patients, that there is no rhyme or reason as to who has improvements and who doesn't? That a young female RR patient might be expected to have the best results, but in his work, he is not seeing any predictors such as age, gender, diagnosis, etc. On the other hand, I have heard that PPMS might not be getting as good of results. It would seem to still be very much yet to be determined.1eye wrote:I know the procedure holds the most promise for "RR" people, but some are not hoping for a complete reversal, so much as to stay alive. I believe it can make that happen.
I would think an opened vein might close again because damage had been done to the vein wall over the course of procedures and a long time spent occluded and the force used to open it. Even a vein that recanalizes on its own is not a healthy normal vein but it has been changed by what it's been through. I don't know what role a valve might yet play in that situation.I was told even if it could, then what? My vein would probably close again, as he not be able to treat the valve.
I'd understand better if the answer is that RF does not work when the veins are scarred down, only when it is a simpler clot without the scarring.
I think the risk profile of RF, going by what Dr. Sclafani laid out in his thread, would still be preferable to the risk profile of attempting a jugular graft for most patients. There also needs to be more knowledge about which patients are helped by CCSVI treatment and which aren't. Maybe there are patients for whom the risk/benefit analysis is more in favor of attempting a RF procedure because there is more to gain. Patients who had responded to the procedure by having improvements before losing them when the vein occluded would seem to have a lot to gain if the occlusion could be gotten through.
Does anyone know how many RF procedures in CCSVI patients that Dr. McGuckin has done? Or if he was using RF prior to using it in CCSVI?
the RF would kill the cancer cells , but not healthy tissue.
I'm recalling more of the story now ..... the gentleman inventor had cancer himself . He reasoned that RF might work based on his lifes work, in his line of work.
I think this article was in Popular Science.
I always wondered how it panned out .
[ panned out is a gold miners term , after carefully swishing the gravel in your pan for a long time ..... you hopefully are rewarded with some gold nuggets or flakes ..... thus ...." it panned out " if not .......you say ..."well , it didn't pan out" . ]
RF holds some promise . maybe it does have medical applications .....
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