When the question period came up I asked her if she recommends any of her 500 clients go get their veins checked for blockage. She responded that the MS society has spent a million dollars studying CCSVI and hasn't found a correlation. I asked her if she thought it was healthy to have Varicose Veins of the Brain. She responded that someone had died trying the CCSVI procedure. I asked her if she believed there was a high correlation between folks with MS and folks with clogged brain veins and she said many healthy people have clogged brain veins. I responded if she would clog her jugulars. At that point about 10 people in the audience asked that I shut up.
Anyway the talk continued to theorize that MS is just a disease related to low Vitamin D. That it must be that as kids we don't play in the dirt as much. That the good news was that there are 30 more drugs in the testing stage, and that they are all pills not shots.
My impression is that the patients attending and this doctor just want to ignore these CCSVI findings.
The only good news at the meeting is that I found out a local clinic NW Vascular Lab is doing CCSVI screenings.
For all of the ups and downs this theory is being put through I am really proud of our health care system. It isn't perfect, it's very expensive, but there is competition, innovation, and hope.
Thank you all for your continued efforts to save lives.
Access is needed in Canada, awareness is needed here in the US.
For anyone in MN, I've started a meet-up group called CCSVI Awareness Minnesota. Our first CCSVI support group meeting is a week from now. PM me if interested in the details.
area or Xiaflex to the vein before they do the angioplasty. This would possibly help the vein to STAY open without
putting in a stent, and maybe there wouldn't be restenosis either. These could be injected INTO the vessel wall where
the angioplasty is planning to be done. It would NOT be injected into the blood stream and go systemically, but act
much like getting rid of crow's feet around the eyes when injected.
WOULDN'T YOU LOVE TO HAVE THE CHANGES LAST WITHOUT PUTTING A FOREIGN OBJECT IN THE VEIN? I WOULD.
The Botox paralyzes muscle by relaxing it, and the application I see would be in patients who have veins that are compressed by neck muscles such as the sternocleidomastoid. Botox the muscle, and it will relax, and which may enable flow through the vein. This would only work after other forms of CCSVI were treated, such as stenosis at the valves. Neck stretches might be tried prior to trying botox. This is only for people diagnosed with muscular compression, which would be a small subset of people CCSVI.
I very much agree about not wanting stents in the veins if they can be avoided.
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Cece wrote:The valve is collagen, as I understand it. What is Xiaflex?
[color=blue]New York Times[/color] wrote:Xiaflex is an enzyme produced by a gangrene-causing bacterium, Clostridium histolyticum, which uses it to eat away the tissues of its victims. The enzyme, called collagenase, breaks down collagen, a major component of the body’s connective tissue that is found in skin, tendons, cartilage and other organs.
Good questions!Cece wrote:How would it work on the veins, and how do you know it won't go systematic?
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