Holly at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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mrhodes40
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Post by mrhodes40 » Wed Jul 01, 2009 11:00 am

Hi Holly!! I agree with everything Cheer and Lew said. I want to add that people can have extensive brain issues and still recover large amounts of funciton.

Here is a video of a girl who lost 1/2 of her brain


and my favorite one about a spinal cord repair after 85% damage
http://www.washingtonpost.com/wp-dyn/co ... 02675.html

this guy does the iron man nowadays and they show his MRI with the damage to his cord. There is much more possible than we thought, all it takes is for the disease process to stop so we can get on with it.

You've done all you can to get past the continual whacking of the brain by back pressure--I mean azygos and jugs? double whammy!--so now the rest of it begins! you are on the path. Note that even the young kids with the surgery take time to get better they key is to doit!
you are on the path!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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Loobie
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Post by Loobie » Wed Jul 01, 2009 11:20 am

Amazing. I am off work until my turn and thus am on here almost non-stop today. Watching those videos is really something. I dare not even imagine.

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cheerleader
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Post by cheerleader » Wed Jul 01, 2009 11:40 am

Thanks for posting those videos, Marie. Incredible proof of the plasticity of the human brain and spine. LOVE the spinal injury/rehab video! I just finished reading Doidge's "The Brian That Changes Itself"...full of similar tales of recovery from brain injury, thanks to plasticity. Marie's so right, the first step is to remove the constant reflux and attack on the CNS...then the healing and rehab can begin.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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Loobie
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Post by Loobie » Wed Jul 01, 2009 1:23 pm

cheerleader wrote:I just finished reading Doidge's "The Brian That Changes Itselfcheer
Who's Brian :lol: :lol: :roll:

Just bored and giving you some poop!!

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mrhodes40
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Post by mrhodes40 » Wed Jul 01, 2009 3:55 pm

Every human being on this board ought to read Doidges "THe brain that changes itself. Lew if you haven't yet, get it for light reading pre Stanford visit. If you own it already re read it for fun!!

Get you in the right mind for your trip.........
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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cheerleader
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Post by cheerleader » Wed Jul 01, 2009 4:35 pm

Loobie wrote:
cheerleader wrote:I just finished reading Doidge's "The Brian That Changes Itselfcheer
Who's Brian :lol: :lol: :roll:
Just bored and giving you some poop!!
apparently, my brain has been changing itself...in not a good way :)
thanks, Lew!
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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kimaesha
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Post by kimaesha » Mon Jul 06, 2009 4:09 am

here's more info and ideas i hope it will help to get back in the topic ^_^ phlebologist

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Jamie
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Post by Jamie » Mon Jul 06, 2009 5:30 am

Everyone should read that book!

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