I read somewhere that the blood thinners a young woman took after the surgery caused her to have a fatal stroke. I'm not having this if this is the truth. What I need to know is what the name of that blood thinner was and how much she was taking.
My fiance wants to go into this "boldly". I'm calling this "blindly" as he sees what everyone else wants to see which the cure for MS. The thing is, I don't want him going into this with the wool pulled over his eyes so if anyone can help me, please let me know what the blood thinners were called and how much the poor woman was taking.
I don't mean to sound too frank. I just love him so much and to be honest a big part of me would die with him if he was killed over this. Call it selfish, but the person with MS isn't the only one living with the disease.
But hundreds have had the procedure done and she was the only death.
I can't really say about stanford as I live in UK, but I know this thread has been significant for a few people and it might help you too.
- Family Elder
- Posts: 398
- Joined: Wed Dec 02, 2009 3:00 pm
- Location: Fredericton, Canada
We are all hoping that the results of the study in Buffalo (due to be announced next Sunday in Hamilton, Ontario) will validate the CCSVI/MS hypothesis. If that happens, it should make it much easier to get vascular specialists and IRs interested in helping undertake CCSVI interventions.
My blog: www.my-darn-ms.blogspot.com
I can't say about Buffalo, but on the outside shcne that SCGIRL is Southern california and not South Carolina, here is somSCGirl wrote:Okay, this is my first post... I have been contacting, or I should say, attempting to contact Stanford University and Buffalo for updates on the CCVSI surgeries. I am willing to go wherever I need too.
California information. Dr. Dake at Stanford declined to see me for possible restenosis from a previous procedure because he thought I should instead go to a place where they could provide treatment if there was indeed something wrong. That tells me that he cannot provide treatment in general. I think (but am not sure) that he is doing a study, so if you can qualify for the study he can treat you and follow you but otherwise probably not.
Dr. Sclafani has his American Access unit set up in San Diego. Call Dr. Rattner at (619) 263-9729. They are taking patients.
Vascular Access Centers - dr. mcGuckin
14220 Interurban Avenue South
Tukwila, WA 98168
good staff, so far positive results have been mild but definite..
Dr. Gerald A. Niedzwiecki in Clearwater of the Advanced Imaging and Interventional Institute. He has done over 300 CCSVI procedures and seems to be up on the latest. He doesn't like to do stents unless absolutely necessary or the patient insists. See my own history under "CCSVI in Two Days".Stacia wrote:I live in Florida, is there a place to explore CCSVI in my state?
I don't think CCSVI helped me, but I can't complain about the doctor.
- Similar Topics
- Last post
- 0 Replies
- 37 Views
Last post by ElliotB
Wed Feb 13, 2019 1:54 pm
CCSVI in MS reviews
Last post by frodo « Fri Aug 17, 2018 2:07 am
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by frodo » Fri Aug 17, 2018 2:07 am » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 0 Replies
- 759 Views
Last post by frodo
Fri Aug 17, 2018 2:07 am
- 0 Replies
- 593 Views
Last post by Cece
Sun Dec 16, 2018 12:25 pm
- 17 Replies
- 376 Views
Last post by jimmylegs
Fri Dec 21, 2018 3:33 pm
eye research supporting CCSVI
Last post by ThisIsMA « Thu Jan 10, 2019 12:28 amReplies: 1
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by Cece » Sun Dec 16, 2018 12:38 pm » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 1 Replies
- 670 Views
Last post by ThisIsMA
Thu Jan 10, 2019 12:28 am