Received another opinion, and off to NIH tomorrow

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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whyRwehere
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Post by whyRwehere » Wed Aug 19, 2009 4:29 am

Thanks for checking in before you go, and I look forward to the NIH opinion. Good Luck.

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CureOrBust
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Post by CureOrBust » Wed Aug 19, 2009 4:35 am

prof8 wrote:Did you get a sense of why the radiologist in NY would not recommend stents be placed that high up in the jugulars?
I do not know if it is related, however, in the preliminary results paper from Zamboni (http://www.fondazionehilarescere.org/pdf/CX.PDF) there is the following section:
Zamboni wrote:However, no attempt at a stenting procedure was made in the absence of a dedicated device capable of preventing migration. This device would fit the particular morphology of the intemal jugular vein, similar to a upside down milk bottle, and, finally avoid protrusion into the brachiocephalic trunk.

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mrhodes40
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Post by mrhodes40 » Wed Aug 19, 2009 6:08 am

The brachiocephalic is at the bottom end of the jugular vein, not high, so that is probably not the reason considering it had something to do with the "high" location.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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zap
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Post by zap » Thu Aug 27, 2009 3:07 pm

:?: Bump :?:

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Loobie
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Post by Loobie » Thu Aug 27, 2009 4:18 pm

Best of luck Marc!!

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zap
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Post by zap » Sun Nov 08, 2009 4:44 pm

Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

:?:

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cheerleader
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Post by cheerleader » Sun Nov 08, 2009 5:18 pm

zap wrote:Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

:?:
Hey Zap..it's not rude, we're all curious. Marc's just had his second cataract surgery, after another trip down to NIH, and is taking some time away from the computer to heal. Read his blog:
http://www.wheelchairkamikaze.com/
As always, he is an articulate and thoughtful man- I hope we get the report from him in the near future.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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