Why not list CCSVI on Patients Like Me as a treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Sarahbellum
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Why not list CCSVI on Patients Like Me as a treatment?

Post by Sarahbellum » 9 years ago

There are some posts about CCSVI but no members report this as a treatment.

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.

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Post by chrishasms » 9 years ago

123
Last edited by chrishasms 9 years ago, edited 1 time in total.

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GiCi
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CCSVI as treatment

Post by GiCi » 9 years ago

CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
GiCi

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mose
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Re: CCSVI as treatment

Post by mose » 9 years ago

GiCi wrote:CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
GiCi
beautifully put.

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Post by mormiles » 9 years ago

I believe Marie is reporting her CCSVI treatment in that forum. However, Marie's case is complicated by other factors and shouldn't be viewed as a typical representation of the treatment and recovery. Sorry, unless others start posting in the treatment forum, this forum is the best place to track CCSVI treatment. Others may feel as I do---that passage of time will hopefully give them more confidence in posting about it a little bit further afield.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."

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sou
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Post by sou » 9 years ago

Hi.

Whatever the relationship, since CCSVI is present years before MS it can't be a result of it. How can restoring the blood flow to normal be harmful?

sou

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Sharon
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Post by Sharon » 9 years ago

Sarabellum -
Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.
TIME is my answer. I am on the site, but I do not follow it anymore. I choose to get away from the computer and do other things.

Sharon

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