My Turn!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
catfreak
Family Elder
Posts: 792
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi
Contact:

Post by catfreak » Tue Oct 13, 2009 7:00 pm

Woo Hoo Magoo!!!!

Way to go!! I will be praying for you and your trip, testing procedure, ect...

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

Shannon
Family Elder
Posts: 148
Joined: Mon Sep 28, 2009 2:00 pm

Post by Shannon » Wed Oct 14, 2009 4:03 am

Magoo and Rose - Best wishes for your upcoming procedures (hopefully)! I am still awaiting the call from Alex with approval from my Ins.. Can't wait to hear more. Goodluck!

User avatar
Needled
Family Elder
Posts: 361
Joined: Wed Jan 14, 2009 3:00 pm
Location: Connecticut
Contact:

Post by Needled » Wed Oct 14, 2009 4:23 am

Good luck to both of you -- very, very exciting. :D

User avatar
Sharon
Family Elder
Posts: 1282
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado
Contact:

Post by Sharon » Wed Oct 14, 2009 6:48 am

Rose and Magoo - good luck to both of you as you start the CCSVI journey. No need to worry about the staff at Stanford -- they are incredible --- they will take care of you.
Do you have your GP's on board for when you get home? Remember you need someone for the INR testing.
Keep us updated - are either one of you taking a laptop?
Sharon

mormiles
Family Elder
Posts: 215
Joined: Tue Mar 07, 2006 3:00 pm
Location: 75098
Contact:

Post by mormiles » Wed Oct 14, 2009 9:30 am

Dear Rhonda and Rose, I don't believe in luck, so you'll have my prayers. Please be aware that there will be some distances involved between appointments in different buildings. If both of you have good mobility, it shouldn't be a problem---there will be plenty of time in between each one. God bless you both.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."

User avatar
magoo
Family Elder
Posts: 574
Joined: Thu Sep 10, 2009 2:00 pm
Location: Charlotte, NC
Contact:

Post by magoo » Wed Oct 14, 2009 11:24 am

Rose, are you ready??!! Here we GO!
Early to bed for me so I can get up for an early flight. I have my worst symptoms when I wake up, boy do I hope that improves! I have all my stuff packed and I will be spending tonight hugging my boys like crazy!!!
Thanks for the support and wishes, they mean a LOT!
I'll update as I go. I won't have any results until Monday morning when I have my consult with Dr. Dake. I will be trying to squeeze some info out of the techs on Friday though. Wish me luck :) Surgery is scheduled at 2:00 on Monday.
Thanks to everyone here. You all have made this possible for me. I feel so prepared thanks to everyone answering all of my questions and providing their experiences.
Okay...here I go!!!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

User avatar
mrhodes40
Family Elder
Posts: 2067
Joined: Thu Sep 23, 2004 2:00 pm
Location: USA
Contact:

Post by mrhodes40 » Wed Oct 14, 2009 4:25 pm

YAY RHONDA and ROSE!!! sleep well and have a great trip...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

User avatar
CRHInv
Family Elder
Posts: 403
Joined: Sun Aug 30, 2009 2:00 pm
Location: Chandler, AZ
Contact:

Post by CRHInv » Wed Oct 14, 2009 4:27 pm

Rhonda, I am thinking of you!
Rose, Are you going to start a separate thread?
Take care,
Beth

User avatar
Jamie
Family Elder
Posts: 596
Joined: Mon Jan 07, 2008 3:00 pm
Contact:

Post by Jamie » Wed Oct 14, 2009 5:44 pm

To paraphrase Mormiles ..... I don't believe in prayer so I wish you luck!!!

( I am aware of the philosophical contradiction there by the way! )

Anyway, I hope its everything you hope for and that your recovery is swift.

User avatar
Rose2
Family Elder
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area
Contact:

New Thread?

Post by Rose2 » Thu Oct 15, 2009 6:43 am

Jamie, thank you for all positive thoughts, energy, everything.
CRHInv: Sure, I will start a new thread if you think it could help.
I am a little intimidated about how informed all of you are, however, but most happy to share my experiences.
Rose

User avatar
Sharon
Family Elder
Posts: 1282
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado
Contact:

Post by Sharon » Thu Oct 15, 2009 6:58 am

Rose -
I am a little intimidated about how informed all of you are, however, but most happy to share my experiences
We learn from each other - do not feel intimadated - we will learn from you.

Sharon

User avatar
Rose2
Family Elder
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area
Contact:

Thank You

Post by Rose2 » Thu Oct 15, 2009 7:05 am

Thank you.
I will start a thread for my upcoming testing and procedure with Dr. Dake.
Rose

User avatar
gibbledygook
Family Elder
Posts: 1414
Joined: Mon Feb 14, 2005 3:00 pm
Location: London
Contact:

Post by gibbledygook » Thu Oct 15, 2009 7:19 am

Good luck!
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

User avatar
Rose2
Family Elder
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area
Contact:

thank you

Post by Rose2 » Thu Oct 15, 2009 7:37 am

thank you very much.
Rose

User avatar
Rose2
Family Elder
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area
Contact:

FRiday is here!!

Post by Rose2 » Thu Oct 15, 2009 7:05 pm

Magoo!
I am sure you are here in the Stanford area. I hope your flight went well and you are resting.
I have been holding you in my thoughts all day! Can't wait for you to get to your testing tomorrow.!!
Right behind you!
Rose.
ps. sorry if Magoo has posted somewhere else today and I didn't see it.

Post Reply