Procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
ErikaSlovakia
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Procedure in Poland

Post by ErikaSlovakia » 9 years ago

Today, it was the first procedure/surgery in Poland made by Dr. Simka and his team. Of course, successful!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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fernando
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Post by fernando » 9 years ago

Great!

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CRHInv
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Post by CRHInv » 9 years ago

Awesome! Any more details?
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.

ErikaSlovakia
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Post by ErikaSlovakia » 9 years ago

No, no more details so far.
I hope to have more tomorrow. I am supposed to visit Rici in hospital.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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GiCi
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Poland

Post by GiCi » 9 years ago

Great news, Erika!
GiCi

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Ernst
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Post by Ernst » 9 years ago

This was best news of day, related to CCSVI. So Poland is the 4:th country where liberation procedure has been made? Hopefully there will be more operations, more countries.. spreading and spreading.. and even to Finland some day.. 8O
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg

ErikaSlovakia
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Post by ErikaSlovakia » 9 years ago

My report from Poland: Oct. 20th and 21st.
I went to see Rici to this hospital:
Niepubliczny Zakład Opieki Zdrowotnej EuroMedic; Oddział chirurgii naczyniowej; ul. Głowackiego 10; 40-052 Katowice

It was only 1 minute walking from my hotel Franz Josef. I hope to find the web page soon. There are more EuroMedics in Poland.
The building is dark yellow and looks old.

Rici was 24 hours after the procedure. He could walk normally, just with one cane. He was in very good mood, he did not have any pain.
His procedure: it took one hour, 2 doctors were there, Dr. Ludyga was performing it, Rici had NO pain during the procedure, they did it directly on neck - it means he had only three very small points after a needle on his neck - I saw it, they "injected" one stent into his left jugular vein.
They could not enter from the femoral last week, because the vein was so narrow/blocked in his neck area.

He also got a catheter to be able to urinate, because he must "run" often.
When I was there he did not have the catheter anymore. He must inject Clexane every day for two months. The needle is only 1 cm long and thin like a hair.
He takes no interferon, no Copaxone, no Tysabri. He still must take Baclofen.
He told me about his first improvement: he can straight his finger on his left hand after long time without any problems. He posts about more improvements on csvi - german part. He does not speak English.
I told him about LDN, he wants to start with it.
He had big problems with Avonex as well as with Fingolimod.

The hospital inside is very modern and new. I saw such hospital only in Vancouver, in Italy and in Austria.

Rici does not have attacks, so I think he is SPMS. He does not go to see any neuro anymore because of MS, because he is very dissapointed.
I think he is over 50, but I am not sure.

Next day, Oct. 21st I had my MRV done. Dr. Simka was so nice and he drove me to the town Zabrze. A Czech doctor had an MR training there. He did not want to tell me his name. I expect surprise.
My MRV took 50 minutes without the contrast injection. I have the CD, but I do not have the results. Doctors in Poland need time for it of course.

I had my regular MRI of my brain and spine yesterday.
Any questions?
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

ErikaSlovakia
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Post by ErikaSlovakia » 9 years ago

Oh, I almost forgot an imortant name.
The radiologist in Zabrze, in Poland is Dr. Hartl.
He was also very nice.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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Arcee
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Post by Arcee » 9 years ago

Erika, how interesting! And how wonderful of Dr. Simka. Congratulations on the huge progress you have made.
Just curious if you have any thoughts on why that doctor didn't want to tell you his name - - was he not supposed to be doing it? did he not want it posted online?
And, depending upon what Dr. Simka sees, what are you thinking will be possible regarding an intervention given the bureaucratic constraints you have been dealing with?
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

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Iskierka
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Post by Iskierka » 9 years ago

ErikaSlovakia wrote:No, no more details so far.
I hope to have more tomorrow. I am supposed to visit Rici in hospital.
Erika
Erika maybe now you tell us how are you feeling after the treatment. I will have it in February 2010.

ErikaSlovakia
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Post by ErikaSlovakia » 9 years ago

Hi Iskierka!
I like your name - it is the same in my language.
You can find it here: http://www.thisisms.com/ftopicp-76886.html#76886
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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Iskierka
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Post by Iskierka » 9 years ago

ErikaSlovakia wrote:Hi Iskierka!
I like your name - it is the same in my language.
You can find it here: http://www.thisisms.com/ftopicp-76886.html#76886
Erika
Hi.
You are so nice. Our languages are similar at all, maybe I should write to you in polish, what do you think? ;). I am very happy that you feel better, don't feel anxiety for walking . I have 6 on EDDS scale and have biproblems with walking. I hope you will be feel better and better.
I support to you.
Regards. Iza

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SSG
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Post by SSG » 9 years ago

We just returned from Poland. Same doctors. Same excellent results. the op was done 12/29/09. Ruth is like a new person. The extreme fatigue is gone, constant headaches gone, her vision is improved and she sleeping deeper and much better. The last ten years were particularly bad as her syptoms were worsening. World class care in Poland. Our total cost first class all the way was under $25,000.

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broomdancer
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Post by broomdancer » 9 years ago

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ozarkcanoer
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Post by ozarkcanoer » 9 years ago

SSG,

Do you mind if I ask what kind of venous abnormalities were discovered ?

ozarkcanoer

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