- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
ith my GP today I asked to see a circulatory specialist because I wanted a doppler ultrasound and MRV. She said she could order the tests but that I'd need to know exactly who is doing these. And she didn't recognize the MRV test so I've been told to find out more and if anyone else here has done these and if so where so that I'll have them done right. At least she's not saying no, just doesn't want me to be sent for tests that may not be done properly etc...
I wasted too much time and money on neurologists for this matter...they are all in the same "no" boat.
Your GP is the only answer. Keep trying....
One mission complete, as the petitioning and protesting continues.
Don't give up Canadians, we are closer than we were in Nov 09 and there are a few people on our side. It is so unfortunate Canada is losing out on the opportunity to study so many people who have had to seek treatment abroad. We will keep fighting for our rights here in the mean time.
Good luck everyone.
- Family Elder
- Posts: 3741
- Joined: Wed Mar 17, 2010 3:00 pm
- Location: Kanata, Ontario, Canada
My GP has the report. I didn't get any picture, because they were extra, and would have cost more time, and he said they didn't show anything. It was the last such appointment due to the order from the association.
So Dr. Rose had his way. But due to the intervention of a doctor friend, I had already seen both jugulars with severe narrowings, on a different machine, with a 5 MHz probe.
The other thing I was wondering if anyone can tell me, he kept asking me to do a valsalva, blow out all my breath, and presumably he looked for something at that poiint. Then he would say: 'breathe normally'. What is expected to happen here? I have never heard of this.
Not a doctor.
Sorry I do not know how to provide a link to the thread. It is called:
Canadians (and others) Lets push our medical system!!!
Fast forward to June -- decided to hell with it we are going to Poland. There was a story about us on the front page of the local newspaper because of the MS Walk. Story said we were going to Poland in September. We had made an appointment with the GP for a referral to Barrie Imaging before the Poland decision so we decided to keep the appt anyway to see what he said.
He saw the newspaper story the night before and told us that since we had a treatment plan in place to treat the condition if it was found that WheelieBob has stenosed jugulars, he could make the referral to Barrie for us. Basically what he was saying was that the Medical Association says he can't send us for diagnostic testing if there is no treatment available; but, since we are going to Poland for treatment he can refer us for testing. Does that make any sense?
So now we are waiting for the appointment from Barrie -- our GP was told it would take about 6 weeks. We are hoping we get in to Barrie before going to Poland so we have some ammunition to use to try and get treated here.
My GP has been following ccsvi in the media, and wrote a referral to Barrie for me no problem. I faxed in April 25th, but have not heard back yet.
They told me last week they are working on april 23 requests.
Apparently the poor people are run off their feet trying to keep up. I think I heard they may be training someone else to clear up the backlog.
This all sounds like a golden business opportunity for someone.
Let see, our package includes an ultrasound, MRV, angioplasty,
full body massage and two gin and tonics.
http://www.thebarrieexaminer.com:80/Art ... ?e=2619856
This woman is dying of MS as half of us do.
Farrell was to undergo the procedure April 22 in hopes that her symptoms would be held at bay. But just two days before it was to happen, it was cancelled.
McDonald was no longer permitted to treat patients with MS. Although his imaging clinic has identified the condition in close to 300 MS patients, none beyond the first six, have been allowed to undergo angioplasty at home.
"I was told I wasn't going to do anymore," he said. "They're just saying you can't do them."
- Similar Topics
- Last post