Continue using DMDs after procedure...?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Will you continue to use DMDs after ballooning/stent?

Yes
2
33%
No
1
17%
Not sure
3
50%
 
Total votes: 6

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ikulo
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Posts: 444
Joined: Tue Aug 04, 2009 2:00 pm
Location: colorado

Continue using DMDs after procedure...?

Post by ikulo » Sat Nov 28, 2009 9:50 am

Hey all,

those of you who have had the procedure (stent or balloon) or are planning on getting it, are you planning on staying on your current DMDs (copaxone, rebif, avonex, betaseron, etc.)? What are everyone's thoughts on this?

I added a poll, but I'd like to hear why or why not,. I'm just curious about my future options if I decide to get this done - weigh costs/benefits - but wanted everyone's experiences, thoughts, advice.

ErikaSlovakia
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Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe
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Post by ErikaSlovakia » Sat Nov 28, 2009 9:57 am

I have never been on DMDs and I do not plan to start with them.
I have been on LDN for a year and I continue with LDN aftr the procedure.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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wobbly
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Posts: 73
Joined: Thu Jan 01, 2009 3:00 pm

Post by wobbly » Sat Nov 28, 2009 1:33 pm

going off tysabri soon / then switching 2 copaxone most likely / he s [dr]\ getting afraid of it/ 32 treatments that is in the range of pml/ the risk seems harder than they thought / MS SUX i wish i could get balloned again :?: :?:

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