It turns out I didn't have stenosis but one jugular had a valve that was upside down, the other jugular had a membrane across it.
Both problems were congenital and have been cleared using balloons rather than stents. My Azygous vein was O.K.
Already my voice is clear and strong, last night there were none of the sleep interrupting spasms and my bladder has stopped going into spasm.
Despite having little sleep my mind is much clearer and faster.
All the team in Poland were very nice and professional too. I cannot fault them.
I will post any more improvements as they occur.
Anyone going soon, there's no need to be apprehensive, this is the best thing that has ever happened to me!
I noticed from other posts that you have PPMS. Did Dr. Simka say anything about a possible different presentation of stenosis between RRMS and PPMS. I guess what I'm trying to ask is, did he image your spinal column as well?
I hope that your improvements continue!
It seems odd that Simka in the early going is finding valve problems but hardly any of Dake's patients have reported that. And then there's Zamboni's azygos.
All the best,
Wonky can you please make a tracking entry if you haven't already?
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
I'm glad you are doing so well.
I'll have an MRV in Poland the tenth of December, the operation the fifteenth.
Do you have problems with injecting the clexane? I tried to buy the auto-injector here in the Netherlands but it is not sold here.
Do you know if they sell it in Poland?
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