THANK YOU FOR SUPPORTING HOLLY

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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jerkbutt
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THANK YOU FOR SUPPORTING HOLLY

Post by jerkbutt » 9 years ago

HOLLY WOULD BE LAUGHING.SHE GAVE ME THE NICKNAME JERKBUTT.WE LIVED 12 YEARS TOGETHER,HAPPY B- DAY HONEY.I MISS YOU.AND THANK YOU EVERYONE FOR YOUR SUPPORT FOR HOLLY EVERYONE,TO MANY TO LIST.HOLLY LOVED THIS WEBSITE.TAKE CARE,GODBLESS EVERYONE. :peace:

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CureIous
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Re: THANK YOU FOR SUPPORTING HOLLY

Post by CureIous » 9 years ago

jerkbutt wrote:HOLLY WOULD BE LAUGHING.SHE GAVE ME THE NICKNAME JERKBUTT.WE LIVED 12 YEARS TOGETHER,HAPPY B- DAY HONEY.I MISS YOU.AND THANK YOU EVERYONE FOR YOUR SUPPORT FOR HOLLY EVERYONE,TO MANY TO LIST.HOLLY LOVED THIS WEBSITE.TAKE CARE,GODBLESS EVERYONE. :peace:
Oh I'm so very glad you posted jerkbutt, that REALLY sounds like something Holly would have come up with from my short time getting to know her. Please PM me if you get back to see this, I'd like to talk a bit more about Holly and didn't know how to reach the family..... Thank you very much for posting!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

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Arcee
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Post by Arcee » 9 years ago

Holly was a joy to have on this website. She is missed.
Thank you for posting. May you gain comfort from staying connected with us.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

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cheerleader
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Post by cheerleader » 9 years ago

thanks for coming on and reminding us about Holly's birthday tomorrow....I'm sure she called you jerkbutt in a loving way (or did you deserve that name???) :wink:

Please stay connected with us all...we're helping each other get thru, one day at a time. Holly was a huge part of all of this-
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com

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Johnson
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Post by Johnson » 9 years ago

I came to this place only very recently, and so I did not know Holly. I do share her birthday though, and that feels like I have some connection.

I'm sorry for your loss. I know it must be so difficult for you, and those who loved her so.

Like the others who have said so already, I hope that you can take some small comfort in sharing the dream that Holly had by reading here of those who follow in her path to healing. Some of us, who are not as brave as she was, included.

Thank you, jerkbutt.
My name is not really Johnson. MSed up since 1993

ErikaSlovakia
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Post by ErikaSlovakia » 9 years ago

Holly,
I have often been thinking of you...
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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jimmylegs
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Post by jimmylegs » 9 years ago

happy bday peek <3 thx for posting JB

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Loobie
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Post by Loobie » 9 years ago

I was thinking of her yesterday when ordering "Terrapin Station" for my stepson; she loved the Grateful Dead. Happy birthday Holly.

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Needled
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Post by Needled » 9 years ago

Thinking of you Holly and your friends and family. Miss you...

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javaneen
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Post by javaneen » 9 years ago

You are in my thoughts Holly! Thanks for posting this for us Jerkbut...haha I have to laugh at the name :lol:
javaneen

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mrhodes40
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Post by mrhodes40 » 9 years ago

Holly is not forgotten. Her legacy lives on in how she touched so many of us. I was trepidatious seeing your name--and laughed when you told the story of where it came from. Thank you for reaching out and saying hello to us Jerkbutt!!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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Algis
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Post by Algis » 9 years ago

How could we ever forget :cry:

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catfreak
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Post by catfreak » 9 years ago

Hi Jerkbutt!!

So glad you came on TIMS.

Holly is our Angel and will NEVER be forgotten.

I miss her and I know everyone else does too.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

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Sharon
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Post by Sharon » 9 years ago

JB - thank you so much for coming on TIMS - I know you have been lurking around the site and have read the many, many posts from people who never met Holly, but felt as if she was their friend. I remember the phone conversations Holly and I had when we were at Stanford in June. What a wonderful sense of humor -- she had me laughing soon after my surgery. We became friends and support buddies.

This is a tough time for you and for Holly's family -- know that there are kind thoughts and prayers being sent your way.

Sharon

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