The wait is so LLLLONNNNGG.
Every day seems like a month.
I am so excited, even if I don't get any improvement (I'm sure I will), I'll be happy with stabilizing.
We are all on quest to defeat this disease for us, for our children, and everyone who might get this dreadful disease. We must win, we will win.
And who are the heroes? Dr. Zamboni, Dr. Simka, and their teams, to be the first to "boldly go where no man has gone before" as captain Kirk said it.
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
I am EDSS 7 or 7.5.
I am on Novantron chemotherapy, which I hate. Even with that I am still getting worse. I told him the truth about my worsening condition. Every day I am worse than the day before.
numbness, weakness of legs and arms, problem with fingers, bladder problem, stiffness of legs, spasticity. Right hand fingers starting to act up on top of numbness and weakness.
If I could afford to wait, I would, but the way I am spiraling down, I can't wait. Next year may be too late.
For those who are curious:
Flying from Los Angeles to Munich, non stop with Lufthanza, then to Katowice, arriving there around 11 PM.
I chose to fly back from Krakow, decided to stay there for couple of nights.
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