Dr Zivadinov and BNAC !!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Post by happy_canuck » Sat Jan 16, 2010 9:21 pm

I agree that these are two different broadcasting networks and CBC was scooped, plain and simple. A whole bunch of people, myself included, now watch CTV as a result.

Remember the film editors and producers can edit a tape to set the tone they want. If someone was jumping up and down in excitement one moment and they caught him catching his breath and saying "oh, I don't know" in another, which clip they pick is subjective and biased.
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Post by cah » Sat Jan 16, 2010 9:35 pm

Thank you Mark for putting down my confusion. I've seen this video for the first time today and now have seen it three to four times... I think you're right. Seeing the huge consequences it has, he can but say something like that. Anything else would heat it up even more. Anyone who is diagnosed will demand treatment. I even can imagine that they have decided to hold back the first report of their study (being announced first for november) as there is quite a problem in the fact that there is this perception, but no approved treatment to it.

I still wonder what they think about Dr. Simka. But the fact that nobody is warning about his treatment is also quite telling.
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Post by Mechanicallyinclined » Sat Jan 16, 2010 11:05 pm

The CBC is basically a government run broadcasting station. I expected their kind of view on this topic. Only the I'll informed are talking of this as a cure. What else would you expect a government run station to do on this topic but down play it and send out the word of caution.
You know a reporter can put any spin they wish to on a story. Just ask questions that you know will get you the answers you wish. If you want a negative story, you only put the negative stuff on. I'm sure the doc had more positive things to say, but they air what they wish to. Their information isn't totally wrong . It's just how you present it to the public.

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Post by Dramis » Sun Jan 17, 2010 2:00 am

Well from what I read you guys are really optimistic about it (I am too but I have difficulty thrusting mankind... especially when it involves money) Don't get me wrong I cried a whole weekend after looking at the W5 program.

I've been it with the !@#$%? thing since 2000 and its been downward ever since not a single break... Betaseron, chimotherapies and now Tysabri... nothing worked. I was a golfer, a skier dad an now a 24/7 wheelchair dad.

My doc is someone everybody is looking at around here, he is a 30 years if not 40 veteran in the business. Since the program (W5) I've been feeding him and his personnal assistant with stuff and all he reads everything that comes out on the net. I get e-mails from them almost every day.

And what he says is the MS treatments would have been much farther if everybody would stop trying to be the first in it. When someone has a good idea he gets piled on by the others, he as seen so many fights about nothing in this area that you can count.

For him the real guy who is working for us here in Canade is Dr Mark Haacke, from McMaster University in Hamilton. in the W5 program he was the first to say that Zamboni was right because he too had found the iron deposits but never knew where it came from. And, now he is working towards that... http://www.ms-mri.com/index.php for me if something is coming out here it will be because of him...

As for my Neurologist he is starting something on is own no grants here !! with the help of a radiologist at his hospital he will start with non-ms people and works his way from there... but believe me you won't see him in the news... :lol:

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Post by ozarkcanoer » Sun Jan 17, 2010 6:55 am

My optimism remains. I never expected a cure. But I do hope that the BNAC study will show a strong correlation between CCSVI and MS. I have read Dr Zamboni's papers and I watched the documentary several times. No one suggests a cure (except Dr Salvi, but he has to be careful..... hmmmmmm). I don't think Dr Zivadinov would be conducting this study if he thought there was no merit to it at all. And we don't have too long to wait for the initial study results and then we can discuss them to our hearts' content, LOLOL.


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Post by Mechanicallyinclined » Sun Jan 17, 2010 8:50 am

When we've been through what we all have with MS it defintitely gives you mixed thoughts on the whole CCSVI issue. Since the W5 segment aired, I've listened to alot of points of view from different perspectives.I have not heard an opinion opposing the CCSVI issue that could stand up to explanations of why CCSVI is a valid condition. It just makes sense. No question in my mind. There are definitley issues to iron out , but we're on the right path. Why is it hard to imagine that improper blood flow related to any part of the body, is a detriment to the organs involved? Common sense answers that question for me. It's hard to comprehend that this is all happening, but it is.

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Post by DizzyLiz » Mon Jan 25, 2010 9:35 pm

ozarkcanoer said:

"My optimism remains. I never expected a cure. But I do hope that the BNAC study will show a strong correlation between CCSVI and MS. "

Could this mean we should hope?

Is this old news? Is it a hint of things to come?
They do have the experts there in Buffalo, and there are an awful lot of MS'ers.

What do you think?

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Post by bestadmom » Tue Jan 26, 2010 5:46 am

"Advances in medicine have blurred the lines between specialties that handle conditions in the body's vascular highway. Yet heart and vascular surgeons tend to work separately and, at times, competitively.

The thinking goes that the benefits of coming together — from sharing knowledge to being more cost-efficient — outweigh the turf battles that historically split the specialities.

"We've created a building that will force doctors to get out of their silos and collide with each other, and with scientists," said Dr. L. Nelson Hopkins III, chief of neurosurgery at Kaleida Health and chairman of neurosurgery at UB."

This can't be new news, since plans like this don't happen overnight, but the inferences are stunning and the results of the first 500 people tested in the CCSCI study will be stunning too.

It's refreshing to see doctors from different disciplines collaborating.

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